Resources for Cancer Patients

Alternative Treatment Information & Referrals

From Cynthia
In my years at The National Foundation for Alternative Medicine (NFAM), I was always on the lookout for helpful resources for the cancer patients I interacted with. The list on this page and on the resource pages to the left were compiled for that purpose and give patients a starting point to educate themselves. It offers a mix of organizations, books, websites, consultants, guidelines and other connections that could prove helpful, depending on each patient’s circumstances and needs. For example, many cancer patients will not be interested in exploring the more conventional option of a clinical trial, however there is information included here for those who do wish to educate themselves in this area. There are organizations that will arrange free travel on corporate jets, advocate with insurance companies, and even help with financial assistance.

In general, the list of five organizations listed below offer specific referrals and treatment recommendations and are excellent resources. They're a great place for cancer patients to start exploring their options and educating themselves. Although these reports and services might be considered expensive (except the first), they offer an extremely valuable service. At NFAM, the decision was made for legal reasons not to offer specific recommendations or referrals to those who contacted us, so I frequently suggested the following contacts to patients.

Organizations that specialize in alternative & complementary cancer treatment information and referrals:

Center for Advancement in Cancer Education
Susan Silberstein, Ph.D., Executive Director
300 E. Lancaster Ave. Suite 100, Wynnewood, PA 19096
Phone 610-642-4810 FAX 610-896-6339
Email: caceinfo@aol.com Website: www.beatcancer.org

This is a non-profit cancer information, counseling and referral agency that focuses on combining the body's natural healing potential with advances in medical science. The Center offers resources for cancer prevention as well as non-toxic approaches as adjuncts or alternatives to conventional cancer treatments. Referrals are available for patients to doctors, clinics and treatments. Phone and in-person consultations are available. A very reasonable membership donation is requested. See the chapter on Susan Silberstein on this website for more information about its mission and how the Center operates.

Ralph W. Moss Ph.D./The Moss Reports
PO Box 8183, State College, PA 16803
Phone 800-980-1234 or 814-238-3369 FAX: 814-238-5865
Email: info@cancerdecisions.com
Websites: www.cancerdecisions.com AND www.ralphmoss.com

Respected cancer researcher and author Ralph Moss creates individualized reports (currently priced at $297) recommending the best alternative and complementary treatments and clinics for specific types of cancer. Free information, excellent free weekly newsletter and patient testimonials are also available at the website. HIghly recommended.

CanHelp
PO Box 103, Port Gamble, WA 98364
Phone: 360- 297-5520 or Toll Free (800) 565-1732
Email: canhelp@centurytel.net or madeleen@canhelp.com
Website: www.canhelp.com

CANHELP prepares detailed, individualized, professional reports to help cancer patients with their treatment options. Costs vary from $350-$450 depending on how quickly information is needed. Other options such as hourly consults available. There's a page with good resources to explore at http://www.canhelp.com/Links.htm.

Frank Wiewal/People Against Cancer
604 East St. PO Box 10, Otho, IA 505-69-0010
Phone 515-972-4444 FAX 515-972-4415
Email: info@peopleagainstcancer.com
Website: www.peopleagainstcancer.com

A non-profit organization that offers personalized medical consulting services utilizing an international database of physicians and researchers at a membership cost of $500. Free information and newsletter.

People Against Cancer—Germany
Lothar Hirneise, President
Postfach 12 05, 71386 Kernen, Germany
Phone (direct from the US): 011 497 1519 10217
FAX: 011 497 1519 10218
Email: nexusgmbh@t-online.de OR lothar@sensei.de

This is the European office for this cancer information, education and referral organization. It uses the same personalized medical consulting protocol its American sister organization uses. English spoken. German time is 6 hours ahead of US Eastern time

Cancer Organizations - General

An eclectic but hopefully comprehensive listing of national foundations and organizations that support cancer patients, gleaned from multiple sources and websites. These are generally more conventional or traditional in nature, but a great starting point for research, education and support. Cancer-type specific organizations are listed on separate pages.

National Cancer Institute (NCI) Resources Cancer Information Service (toll-free) Servicio de Información sobre el Cáncer (800) 4-CANCER (422-6237) (800) 332-8615 (TTY) 6116 Executive Boulevard, Room 3035A, Rockville, MD 20852

Even extremely rare cancers can be researched here and are included on the A-Z list at NCI's site. You'll also find details on treatments, genetics, research, and clinical trials.

Online

National Cancer Institute State Cancer Legislative Database Program http://www.scld-nci.net/ The SCLD maintains information about state legislation and regulation addressing cancer-related topics, including tobacco, breast cancer, genetics, cervical cancer, prostate cancer, testicular cancer, colon cancer, ovarian cancer, access to state-of-the-art cancer treatment, cancer registries, and selected issues related to environmental exposure.

What You Need To Know About Cancer of the Cervix http://www.cancer.gov/cancerinfo/wyntk/cervix This National Cancer Institute (NCI) booklet will give you some important information about cancer of the cervix and about some conditions that may lead to this disease. You can read about prevention, symptoms, diagnosis,and treatment. This booklet also has information to help you deal with cancer of the cervix if it affects you or someone you know.

What You Need To Know About Hodgkin's Disease http://www.cancer.gov/cancerinfo/wyntk/hodgkins This National Cancer Institute (NCI) booklet is intended to help people with Hodgkin's disease and their families and friends better understand this type of cancer. This booklet discusses symptoms, diagnosis, and treatment. It also has information about resources and sources of support for people with Hodgkin's disease.

What You Need To Know about Liver Cancer http://www.cancer.gov/cancerinfo/wyntk/liver This National Cancer Institute (NCI) booklet has important information about cancer that begins in the liver. It discusses possible causes, symptoms, diagnosis, and treatment of liver cancer. It also has information to help patients cope with this disease.

What You Need To Know About Melanoma http://www.cancer.gov/cancerinfo/wyntk/melanoma The National Cancer Institute (NCI) has written this booklet to help people with melanoma and their families and friends better understand this disease. This booklet discusses risks and prevention, symptoms, diagnosis, treatment, and followup care. It also has information about resources and sources of support to help patients cope with melanoma.

What You Need To Know About Prostate Cancer http://www.cancer.gov/cancerinfo/wyntk/prostate This booklet mentions some possible causes of prostate cancer. It also describes symptoms, diagnosis, treatment, and followup care. It has information to help men with prostate cancer and their families cope with the disease.

American Cancer Society (ACS) National Cancer Information Center Centro de Información sobre el Cancer 1599 Clifton Road, NE., Atlanta, GA 30329–4251 (800) ACS-2345 (227-2345) 404–320–3333 http://www.cancer.org

In 1913, 10 physicians and 5 laymen founded the American Society for the Control of Cancer. Later renamed the American Cancer Society, Inc., the organization now consists of over 2 million Americans working to conquer cancer. Provides access to easy to understand information regarding programs and events, publications, meetings, cancer information, education and related sites. The ACS is a voluntary organization that offers a variety of services to patients and their families. It also supports research, provides printed materials, and conducts educational programs. Staff can accept calls and distribute publications in Spanish. Print out "Questions to Ask Your Doctor" for your next visit.

A local ACS unit may be listed in the white pages of the telephone directory under “American Cancer Society.”American Cancer Society (ACS) Supported Programs:

Abramson Cancer Center at the University of Pennsylvania http://www.oncolink.upenn.edu

A vast and comprehensive site produced by cancer specialists. Great to access if you want to "dig deep" for information. There's a vast library of journals and books and the site includes an "Ask the Cancer Expert" feature. Past questions are archived. You can submit your own, but the group can't guarantee an answer.

American Institute for Cancer Research Nutrition Hotline Instituto Americano para la Investigación del Cáncer Línea de Información sobre Nutrición 1759 R Street NW, Washington, DC 20009 (800) 843-8114 aicrweb@aicr.org http://www.aicr.org

The AICR provides information about cancer prevention, particularly through diet and nutrition. They offer a toll-free nutrition hotline and funding of research grants. The AICR also has a wide array of consumer and health professional brochures, plus health aids about diet and nutrition and their link to cancer and cancer prevention. The AICR also offers the AICR CancerResource, an information and resource program for cancer patients. A limited selection of Spanish-language publications is available.

Association of Cancer Online Resources http://www.acor.org

Nonprofit organization that offers 135 specialized email lists and online discussion groups for families and patients.

Cancer Care Cuidado del Cancer 275 7th Avenue New York, NY 10001 212–712–8080 212–712–8400 (administration) (800) 813-HOPE (813-4673) (Línea de consejería) info@cancercare.org http://www.cancercare.org

CancerCare is a national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are provided by oncology social workers and are available in person, over the telephone, and through the agency’s website. CancerCare’s reach also extends to professionals, providing education, information, and assistance. A section of the CancerCare Web site and some publications are available in Spanish, and staff can respond to calls and e-mails in Spanish.

CancerCare also operates the AVONCares Program for Medically Underserved Women, which provides financial assistance to low-income, under- and uninsured, underserved women throughout the country who need supportive services (transportation, child care, and home care) related to the treatment of breast and cervical cancers.

Cancer Page http://www.cancerpage.com/

Created for patients and their loved ones, this is a source for the latest news, research, and information on prevention, detection, and treatment. A community resource, includes a glossary of terms, personal stories and experiences, and a doctor finder. Cancer specific information and much more.

CancerGuide: Steve Dunn's Cancer Information Pages http://www.cancerguide.org

Helps patients to find the answers about their type of cancer. Good guide for a user who would like to independentlyresearch about cancer. Information includes recommended books, how to research medical literature, clinical trials, experimental therapies, and how to access Medline. Special section for kidney cancer. Extensive patient stories for inspiration.

Cancer Index http://www.cancerindex.org/

Featuring a “Guide to InterNet Resources for Cancer,” an annotated directory of over 4,000 links sorted by cancer type, medical speciality, country and other topics. Also Children's Cancer Web, information and links about childhood cancer sorted by cancer type, country and other topics; “Cancer GeneticsWeb”, detailed information for researchers about genetic alterations detected in tumour cells with links to research abstracts and gene databases; “Cancer-UK,” a detailed directory of UK based cancer organizations and information sorted by area, cancer-type, and other topics; “Guide to Medical Terminology and Cancer, "an introduction to related medical terminology; Cancer Glossary.

Cancer Hope Network Red de Esperanza para el Cáncer (Pacientes y familiares enfrentados al cáncer y su tratamiento) 2 North Road, Suite A, Chester, NJ 07930 (877) HOPE-NET (467-3638) info@cancerhopenetwork.org http://www.cancerhopenetwork.org

The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience. Such matches are based on the type and stage of cancer, treatments used, side effects experienced, and other factors.

Cancer Information and Counseling Line (CICL) (a service of the AMC Cancer Research Center) 1600 Pierce Street , Denver, CO 80214 800–525–3777 –Help Line ciclhelp@amc.org http://www.amc.org/html/info/h_info_cicl.html

The CICL, part of the Psychosocial Program of the AMC Cancer Research Center, is atoll-free telephone service for cancer patients, their family members and friends, cancer survivors, and the general public. Professional counselors provide up-to-date medica linformation, emotional support through short-term counseling, and resource referrals to callers nationwide between the hours of 8:30 a.m. and 5:00 p.m. Mountain Standard Time, Monday through Friday. Individuals may also submit questions about cancer and request resources via e-mail. Although located in Denver, Colorado, AMC has a long tradition of service to the entire U.S.

Cancer Nutrition Info, LLC http://web.cancernutritioninfo.com/main.cfm?id=1335

This page offers recipes and tips about cancer fighting foods and diet. It is part of the site Cancer Nutrition Info, LLC, which is devoted to providing information about nutritionand cancer. While Cancer Nutrition Info does offer subscription information, this page presents free content. Treatment Related Symptom Management: http://web.cancernutritioninfo.com/main.cfm?ID=1349

This page offers information on management of symptoms related to cancer treatment. It is part of the site Cancer Nutrition Info, LLC, which is devoted to providing information about nutrition and cancer. While Cancer Nutrition Info does offer subscription information, this page consists of free content.

EMF Health Report http://infoventures.com/emf/hrpt/

An online periodical devoted to covering research on the effects of Electomagnetic Fields (EMF). Has keyword search capability.

Find Cancer Experts: Second Opinions for Cancer Diagnosis http://www.findcancerexperts.com/

Provides information about evaluating cancer diagnosis and how to contact cancer specialists.

The Cancer Project 5100 Wisconsin Avenue Suite 400 Washington, DC 20016 202–244–5038 info@CancerProject.org http://www.CancerProject.org

The Cancer Project provides comprehensive educational materials, conducts clinical research studies, and publicizes the value of a healthy diet in cancer prevention and survival. A limited selection of Spanish-language publications is available.

Cancer Research and Prevention Foundation 1600 Duke Street Suite 500 Alexandria, VA 22314 703–836–4412 1–800–227–2732 (1–800–227–CRFA) info@preventcancer.org http://www.preventcancer.org

The Cancer Research and Prevention Foundation is a national, non-profit health foundation whose mission is the prevention and early detection of cancer through scientific research and education. The Foundation focuses its energies and resources on those cancers—including lung, breast, prostate, colorectal, cervical, skin, oral and testicular—that can be prevented through lifestyle changes or detection and treatment in their early stages. Also offers funding for research grants and fellowships, guidelines to apply online.

CureSearch National Childhood Cancer Foundation & Children's Oncology Group (a network of over 5000 pediatric-cancer specialists) http://www.curesearch.org

Find treatment descriptions, discussion boards (for kids too) and more. Check out the "Resources" link for national and international assistance with everything from travel to financial help to emotional support.

Food and Drug Administration Division of Drug Information Administración de Alimentos y Medicamentos de los Estados Unidos, División de Información sobre Medicament 5600 Fishers Lane (HFE-88) Rockville, MD 20857 (800) 238-7332 or (888) Info-FDA (463-6332) http://www.fda.gov/cder/offices/ddi/

The Division of Drug Information is the Center for Drug Evaluation and Research’s (CDER's) focal point for public inquiries regarding human drug products. It is dedicated to serving the global community by assisting all inquirers and providing useful, accurate information in a timely manner. It is staffed with a team of pharmacists and other health professionals who provide expert advice and guidance regarding all aspects of CDER activities. Visitors include consumers, health care professionals, insurance companies, regulated industry, academia, law enforcement, FDA, other government agencies (nationally and internationally), and others.

Hospice Education Institute Instituto de Educación sobre Hospicios (Apoyo personalizado para los pacientes y sus familias) (800) 331-1620 3 Unity Square P.O. Box 98 Machiasport, ME 04655 207–255–8800 or 800–331–1620 info@hospiceworld.org http://www.hospiceworld.org

The Hospice Education Institute offers one-to-one support for patients and families and serves a wide range ofindividuals and organizations interested in improving and expanding hospice and palliative care throughout the United States and around the world. The Institute works to inform, educate, and support people seeking or providing care for the dying and the bereaved. HOSPICELINK, a service of the Institute, maintains a computerized database and up-to-date directory of all hospice and palliative are programs in the United States. HOSPICELINK helps patients and their families find hospice and palliative care programs, and provides general information about the principles and practices of good hospice and palliative care.

Lance Armstrong Foundation (LAF) Post Office Box 161150 Austin, TX 78716–1150 512–236–8820 http://www.laf.org

The LAF, a nonprofit organization founded by cancer survivor and cyclist Lance Armstrong, provides resources and support services to people diagnosed with cancer and their families. The LAF’s services include “Cycle of Hope,” a national cancer education campaign for people with cancer and those at risk for developing the disease, and the “Cancer Profiler,” a free interactive treatment decision support tool. The LAF also provides scientific and research grants for the better understanding of cancer and cancer survivorship.

Cancer Organizations - Female

American Society for Colposcopy and Cervical Pathology
Sociedad Americana para la Colposcopia y Patologia Cervical
(800) 787-7227
20 West Washington Street, Suite 1, Hagerstown, MD 21740
www.asccp.org

Established in 1964, the American Society for Colposcopy and Cervical Pathology (ASCCP) is the health care professionals’ organization committed to improving health through the study, prevention, diagnosis, and management of lower genital tract disorders.

AVONCares Program for Medically Underserved Women, Cancer Care
Cuidado del Cancer
(800) 813-HOPE (813-4673) (Línea de consejería)
275 7th Avenue, New York, NY 10001
212–712–8080
212–712–8400 (administration)
info@cancercare.org
www.cancercare.org

CancerCare operates the AVONCares Program for Medically Underserved Women, which provides financial assistance to low-income, under- and uninsured, underserved women throughout the country who need supportive services (transportation, child care, and home care) related to the treatment of breast and cervical cancers. CancerCare is a national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are provided by oncology social workers and are available in person, over the telephone, and through the agency’s Web site. CancerCare’s reach also extends to professionals—providing education, information, and assistance. A section of the CancerCare Web site and some publications are available in Spanish, and staff can respond to calls and e-mails in Spanish.

Gilda’s Club® Worldwide
Suite 1402
322 Eighth Avenue, New York, NY 10001
888–445–3248
www.gildasclub.org
info@gildasclub.org

Gilda’s Club Worldwide works with communities to start and maintain local Gilda’s Clubs, which provide social and emotional support to cancer patients, their families, and friends. Lectures, workshops, support and networking groups, special events, and children’s programs are offered. Services are available in Spanish.

Gilda Radner Familial Ovarian Cancer Registry
Roswell Park Cancer Institute [*]

Registro Gilda Radner de Cáncer Ovárico de Familia del Instituto de Cáncer Roswell Park
(800) OVARIAN (682-7426)
Elm and Carlton Streets Buffalo, NY 14263
www.ovariancancer.com
Hysterectomy Educational Resources and Services
Recursos Educativos y Servicios para la Histerectomía
(888) 750-HERS
422 Bryn Mawr Avenue, Bala Cynwyd, PA 19004
www.hersfoundation.com

The HERS Foundation is an independent non-profit international women's health education organization. It provides information about hysterectomy, its adverse effects and consequences, as well as suggested alternative treatments.

Jo's Trust
http://www.jotrust.co.uk/

Jo's Trust is an online information and counselling service dedicated to women with cervical cancer, their family and friends." The site offers free, confidential medical advice from experts and counselors. It also includes general information, news, events, frequently asked questions, and bulletin boards.

Living Beyond Cancer
Suite 204, 10 East Athens Avenue, Ardmore, PA 19003
610–645–4567
888–753–5222 (888–753–LBBC) (Survivors’ Helpline)
mail@lbbc.org
www.lbbc.org

The LBBC is an educational organization that aims to empower women living with breast cancer to live as long as possible with the best quality of life. The LBBC offers an interactive message board and information about upcoming conferences and teleconferences on its Web site. In addition, the organization has a toll-free Survivors’ Helpline, a Young Survivors’ Network for women diagnosed with breast cancer who are age 45 or younger, and outreach programs for medically underserved communities. The LBBC also offers a quarterly educational newsletter and a book for African American women living with breast cancer.

National Asian Women’s Health Organization (NAWHO)
Suite 900, 250 Montgomery Street, San Francisco, CA 94104
415–989–9747
nawho@nawho.org
www.nawho.org

This is a virtual resource center for health issues concerning Asian-American women and their families. The NAWHO is working to improve the health status of Asian women and families through research, education, leadership, and public policy programs. They have resources for Asian women in English, Cantonese, Laotian, Vietnamese, and Korean. Publications on subjects such as reproductive rights, breast and cervical cancer, and tobacco control are available.

National Breast Cancer Coalition
Suite 1300, 1101 17th Street, NW. Washington, DC 20036
202–296–7477 or 800–622–2838
info@stopbreastcancer.org
www.stopbreastcancer.org

The NBCC is a breast cancer advocacy group that educates and trains individuals to become advocates who effectively influence public policies that affect breast cancer research and treatment. It also promotes breast cancer research, and works to improve access to high-quality breast cancer screening, diagnosis, and treatment for all women.

National Lymphedema Network
Red Nacional del Linfedema
(800) 541-3259
1611 Telegraph Avenue, Suite 1111, Oakland, CA 94612
www.lymphnet.org

The National Lymphedema Network is a non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. Lymphedema is an accumulation of lymphatic fluid in the interstitial tissue that causes swelling, most often in the arm(s) and/or leg(s), and occasionally in other parts of the body. Lymphedema can develop when lymphatic vessels are missing or impaired (primary), or when lymph vessels are damaged or lymph nodes removed (secondary).

National Ovarian Cancer Coalition
Coalición Nacional del Cáncer Ovárico
(888) - OVARIAN
500 NE Spanish River Boulevard, Suite 8, Boca Raton, FL 33431
NOCC@ovarian.org
www.ovarian.org

The NOCC raises awareness about ovarian cancer and promotes education about this disease. They have a toll-free telephone number for information, referral, support, and education about ovarian cancer. They also offer support groups, a database of gynecologic oncologists searchable by state, and educational materials. A limited selection of Spanish-language publications is available.

National Women's Health Information Center
Centro Nacional de Información sobre la Salud de la Mujer
(800) 994-9662
8550 Arlington Boulevard., Suite 300, Fairfax, VA 22031
www.4woman.gov

The National Women's Health Information Center (NWHIC) is a federally-funded information resource on women’s health offering free women’s health information on more than 800 topics through a call center and web site. By phone (in English and Spanish) or via this web site you can find:

  • original health information on special topics like pregnancy, breastfeeding, body image, HIV/AIDS, girls health, heart health, menopause and hormone therapy, mental health, quitting smoking, and violence against women
  • original health information and resources for special populations: minority women, women with disabilities, girls, men, and Spanish speakers
  • thousands of health publications
  • statistics on women’s health
  • daily news on women’s health with calendar of events
National Women's Health
Centro Nacional de Recursos
(877) 986-9472
157 Broad Street, Suite 315, Red Bank, NJ 07701
www.healthywomen.org/

The not-for-profit National Women's Health Resource Center (NWHRC) is an independent health information source for women. NWHRC develops and distributes up-to-date and objective women's health information based on the latest advances in medical research and practice. Information about cancer is available, but is more general in scope, a good place to begin the education process.

Ovarian Cancer National Alliance
Suite 413
910 17th Street, NW. Washington, DC 20006
202–331–1332
ocna@ovariancancer.org
www.ovariancancer.org

The Alliance works to increase public and professional understanding of ovarian cancer and to advocate for research to determine more effective ways to diagnose, treat, and cure this disease. The Alliance distributes informational materials; sponsors an annual advocacy conference for survivors and families; advocates on the issues of cancer to the ovarian cancer community; and works with women’s groups, seniors, and health professionals to increase awareness of ovarian cancer.

SHARE: Self-Help for Women with Breast or Ovarian Cancer
Autoayuda para las Mujeres con Cáncer de Seno o del Ovario
(866) 891-2392
1501 Broadway, Suite 704A, New York, NY 10036
www.sharecancersupport.org

SHARE is a twenty-nine year old not for profit organization offering survivor-led support to those affected by breast or ovarian cancer to ensure that no one faces breast or ovarian cancer alone. Drawing on their own experiences, cancer survivors help others address the many emotional and practical issues that arise from a cancer diagnosis. SHARE empowers individuals and communities to advocate for increased access to care, improved treatment modalities and quality of and increased research funding. SHARE’s services include hotlines in English and Spanish, with capacity in 12 other languages, support groups, wellness programs.

Sisters Network, Inc.
Suite 4206
8787 Woodway Drive, Houston, TX 77063
713–781-0255 or 866–781–1808
sisnet4@aol.com
www.sistersnetworkinc.org

Sisters Network seeks to increase local and national attention to the impact that breast cancer has in the African American community. All chapters are run by breast cancer survivors and receive volunteer assistance from community leaders and associate members. The services provided by Sisters Network include individual/group support, community education, advocacy, and research. The national headquarters serves as a resource and referral base for survivors, clinical trials, and private/government agencies. Teleconferences are held to update chapters with the latest information and share new ideas. An educational brochure designed for underserved women is available. In addition, a national African American breast cancer survivors’ newsletter is distributed to survivors, medical facilities, government agencies, organizations, and churches nationwide.

Susan G. Komen Breast Cancer Foundation
Fundación Susan G. Komen para el Cáncer del Seno
(800) IM-AWARE (462-9273)
5005 LBJ Freeway, Suite 250, Dallas, TX 75244
helpline@komen.org
www.komen.org

The Susan G. Komen Breast Cancer Foundation’s mission is to eradicate breast cancer as a life-threatening disease by advancing research, education, screening, and treatment. This organization operates a national toll-free breast cancer helpline (1–800–I’M AWARE) that is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials, including pamphlets, brochures, booklets, posters, videos, CD-ROMs, fact sheets, and community outreach materials, are available. Staff can respond to calls in Spanish, and some publications are available in Spanish.

Y-Me National Breast Cancer Organization
Organización Nacional del Cáncer del Seno Y-Me
(800) 221-2141
(800) 986-9505 (Spanish)
212 West Van Buren Street, Suite 100, Chicago, IL 60607-3908
askyme@y-me.org (English) or latino@y-me.org (Spanish)
www.Y-me.org

The Y-ME National Breast Cancer Organization provides information and support to anyone who has been touched by breast cancer. Y-ME serves women with breast cancer and their families through a national hotline (available 24 hours a day), open-door groups, early detection workshops, and support programs. Numerous local chapter offices are located throughout the United States. A section of the Y-ME Web site, a toll-free hotline, and publications are available in Spanish.

Eyes on the Prize
www.eyesontheprize.org

EyesOnThePrize.org is an online support and information website for women with gynecological cancers including: cervical, uterine, ovarian, vaginal, vulvar, and gestational. Features include extensive links and FAQ sections and an "ask the pros" service (submit questions to obstetricians, oncologists, and nurse practitioners.)

American Cancer Society’s Reach to Recovery Program

This national support program is for breast cancer patients and contact is through face-to-face visits or by phone. The program helps breast cancer patients meet the physical, emotional, and cosmetic needs related to their disease and its treatment. Reach to Recovery volunteers give support for:

  • women recently diagnosed with breast cancer
  • women facing a possible diagnosis of breast cancer
  • those interested in or who have undergone a lumpectomy or mastectomy
  • those considering breast reconstruction
  • those who have lymphedema
  • those who are undergoing or who have completed treatment such as chemotherapy and radiation therapy
  • women facing breast cancer recurrence or metastasis (the spread of cancer to another part of the body)

Volunteers are trained to give support and up-to-date information, including literature for spouses, children, friends, and other loved ones. Volunteers can also, when appropriate, provide breast cancer patients with a temporary breast form and information on types of permanent prostheses, as well as lists of where those items are available within a patient’s community. No products are endorsed. For more information or to locate a Reach to Recovery program in your area, visit "In My Community" on the ACS web site (http://www.cancer.org/docroot/COM/COM_0.asp) to search for resources close to your zipcode, or call them toll-free at 1-800-ACS-2345.

Encore Plus at YWCA of the USA
Office of Women’s Health Advocacy
Suite 700, 1015 18th Street, NW., Washington, DC 20036
Email: cgould@ywca.org Website www.ywca.org

ENCOREPlus is the YWCA’s discussion and exercise program for women who have had breast cancer surgery. It is designed to help restore physical strength and emotional well-being. A local branch of the YWCA, listed in the telephone directory, can provide more information about ENCOREPlus.

Cancer Organizations - Male

Testicular Cancer Information & Support
http://www.tc-cancer.com/

This site has been developed for the sole purpose of education and support for patients with testicular cancer and their family members. Includes cancer facts, sign and symptoms, self-exams, questions, chemotherapy and radiation information, links, stories, and forums.

Testicular Cancer Resource Center
http://tcrc.acor.org/

A resource for information and support about testicular cancer. It includes information on doing a self-exam and a glossary of testicular cancer terms as well as descriptions of various treatments."We provide accurate and timely information about these tumors and their treatment to anyone and everyone interested. We have information for patients, caregivers, family, friends, and physicians. We believe that our information and links are of the highest quality, and we are blessed with the support of some of the finest doctors in the field.

What You Need to Know About Prostate Cancer
http://www.cancer.gov/cancerinfo/wyntk/prostate

This booklet mentions some possible causes of prostate cancer. It also describes symptoms, diagnosis, treatment, and followup care. It has information to help men with prostate cancer and their families cope with the disease.

Man to Man

The Man to Man program helps men cope with prostate cancer by providing community-based education and support to patients and their family members. In addition, Man to Man encourages men and health care professionals to actively consider screening for prostate cancer appropriate to each man’s age and risk for the disease. A major part of the program is the self-help and/or support group. Volunteers organize free monthly meetings where speakers and participants learn about and discuss information about prostate cancer, treatment, side effects, and how to cope with the disease and its treatment.

American Urological Association Foundation
Suite 410, 1000 Corporate Blvd, Linthicum MD 21090
800-828-7866 or 410-689-3990
www.afud.org

The AUA supports research; provides education to patients, the general public, and health professionals; and offers patient support services for those who have or may be at risk for a urologic disease or disorder. They provide information on urologic disease and dysfunctions, including prostate cancer treatment options, bladder health, and sexual function. They also offer prostate cancer support groups (Prostate Cancer Network). Some Spanish-language publications are available.

Prostate Cancer Foundation
1250 Fourth St., Santa Monica, CA 90401
310-570-4700 or 800-757-2873
Email: info@prostatecancerfoundation.org
Website: http://www.prostatecancerfoundation.org/

The Prostate Cancer Foundation is a nonprofit organization that provides funding for research projects to improve methods of diagnosing and treating prostate cancer. It also offers printed resources for prostate cancer survivors and their families. The mission of the Prostate Cancer Foundation is to find a cure for prostate cancer.

Prostate Cancer Research Institute
5777 W. Century Blvd., Suite 800, Los Angeles, CA 90045
Help Line is 800-641-PCRI or 310-743-2110
help@pcri.org
www.prostate-cancer.org

A great deal of treatment information and free newsletter. The Prostate Cancer Research Institute maintains a knowledgeable help line staff, all of whom have received training from the PCRI Co-founders and prostate cancer oncologists, Drs. Stephen Strum and Mark Scholz. Moreover, this experienced staff can draw upon the expertise of PCRI’s Medical Advisory Board for medical information. The helpline staff's purpose is to help the patient understand his diagnosis and his treatment options. This is done using materials from the PCRI archives and by searching for appropriate peer-reviewed medical literature. The PCRI Helpline Facilitators do not provide medical advice. Instead, their goal is to help the patient gain knowledge to promote a better communication with his medical providers in the hopes of obtaining the best possible outcomes.

Cancer Organizations - Other

BRAIN CANCER

American Brain Tumor Association Asociación Americana sobre Tumores del Cerebro (800) 886-2282 2720 River Road, Suite 146, Des Plaines, IL 60018 www.abta.org The ABTA funds brain tumor research and provides information to help patients make educated decisions about their health care. The ABTA offers printed materials about the research and treatment of brain tumors, and provides listings of physicians, treatment facilities, and support groups throughout the country. A limited selection of Spanish-language publications is available.
Brain Tumor Society Sociedad de Tumores Cerebrales (800) 770-8287 124 Watertown Street, Suite 3H, Watertown, MA 02472 www.tbts.org The Brain Tumor Society provides information about brain tumors and related conditions for patients and their families. They offer a patient/family telephone network, educational publications, funding for research projects, and access to support groups for patients.
Children's Brain Tumor Foundation Fundación de Tumores Cerebrales Infantiles (866) 228-4673 274 Madison Avenue, Suite 1301, New York, NY 10016 www.cbtf.org The CBTF is a nonprofit organization that funds research and provides support, education, and advocacy for children with brain and spinal cord tumors and their families. It also provides educational materials (including a Spanish-language publication) and cosponsors conferences and seminars for families, survivors, and health care professionals that offer the latest information about research, treatments, and strategies for living. Through CBTF’s Parent-to-Parent Network, families share their experiences with others in similar situations.
National Brain Tumor Foundation Fundación Nacional de Tumores del Cerebro (800) 934-CURE (934-2873) 22 Battery Street, Suite 612, San Francisco, CA 94111-5520 www.braintumor.org The NBTF provides patients and their families with information on how to cope with their brain tumors. This organization conducts national and regional conferences, publishes printed materials for patients and family members, provides access to a national network of patient support groups, and assists in answering patient inquiries. The NBTF also awards grants to fund research. Staff are available to answer calls in Spanish, and some Spanish-language publications are available.

 

COLORECTAL CANCER

www.colorectal-cancer.net Colorectal cancer (which includes cancer of the colon, rectum, anus, and appendix) is the second-leading cause of cancer-related deaths in the US. Site includes lots of links for prevention, treatment, support.
http://www.mayoclinic.com/invoke.cfm?id=DS00035 Booklet availabe on the Mayo Clinic website. Clear descriptions of symptoms, causes, risk factors, warning signs, screening, treatment, prevention, and coping skills related to colorectal cancer by the Mayo Clinic.

 

EYE CANCER

Eye Cancer Network http://www.eyecancer.com/ An educational website about the diagnosis and treatment of eye tumor patients. Find eye tumor doctors, eye tumor information, and support (for eye tumor patients and their families).

 

GASTRIC CANCER

http://www.cancerlinksusa.com/stomach/index.asp Well-organized site of informative links about gastric cancer. The categories include general information, diagnosis, treatment, support, and related links.

 

HEAD & NECK CANCERS

Support for People with Oral and Head and Neck Cancer (SPOHNC) Apoyo para las Personas con Cáncer Oral y de Cabeza y Cuello (800) 377-0928 P.O. Box 53, Locust Valley, NY 11560-0053 www.spohnc.org
The Oral Cancer Foundation http://www.oralcancerfoundation.org/ "The Oral Cancer Foundation is a national public service, non-profit entity designed to reduce suffering and save lives through prevention, education, research, advocacy, and support."
Cancer of the Larynx http://www.cancerlinksusa.com/larynx/index.htm Collection of authoritative links regarding vocal cord cancer, throat cancer, and laryngeal cancer. Includes general information, diagnosis, treatment, post-treatment, studies, support groups, and organizations.
Cancer of the Thyroid http://www.cancerlinksusa.com/thyroid/index.htm A collection of links regarding thyroid cancer. Includes general information, questions and answers, risk and screening, treatment, organizations, types of thyroid cancer, and support groups.
Thyroid Cancer Survivors Association http://www.thyca.org/ Created and maintained by thyroid cancer survivors, the site "maintains current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers. This site also serves as a resource for anyone interested in thyroid cancer survivors' issues."

 

KIDNEY CANCER

Kidney and Urology Foundation of America Fundación Americana de los Riñones y la Urología (800) 633-6628 1250 Broadway, Suite 2001, New York, NY 10001 www.kidneyurology.org
Kidney Cancer Association Asociación de Cáncer del Riñón (800) 850-9132 1234 Sherman Avenue, Suite 203, Evanston, IL 60202 www.curekidneycancer.org
Kidney Cancer Association http://www.kidneycancerassociation.org/ The organization of patients, families, doctors, and health professionals involved in kidney cancer.
National Kidney Foundation Fundación Nacional del Riñón (800) 622-9010 30 East 33rd Street, New York, NY 10016 www.kidney.org

 

LEUKEMIA & LYMPHOMA

Leukemia and Lymphoma Society Sociedad Americana de la Leucemia (800) 955-4LSA (955-4572) 1311 Mamaroneck Avenue, White Plains, NY 10605 www.leukemia-lymphoma.org or www.lls.org
Lymphoma Research Foundation Fundación de Investigación sobre Linfoma (800) 500-9976 8800 Venice Boulevard, Suite 207 Los Angeles, CA 90034 www.lymphoma.org
Leukemia Research Fund http://www.lrf.org.uk/ A United Kingdom organization that strives to "improve treatments, find cures and prevent all forms of leukaemia and the related blood cancers including Hodgkin's disease and other lymphomas, myeloma, the myelodysplasias and aplastic anaemia." The site has online brochures for the general public as well as sections for researchers and health care professionals.
Granny Barb and Art's Leukemia Links http://www.acor.org/leukemia Comprehensive collection of Leukemia links arranged into the categories information, treatment, genetics, stories, and additional resources.
What You Need to Know About Hodgkins's Disease http://www.cancer.gov/cancerinfo/wyntk/hodgkins This National Cancer Institute (NCI) booklet is intended to help people with Hodgkin's disease and their families and friends better understand this type of cancer. This booklet discusses symptoms, diagnosis, and treatment. It also has information about resources and sources of support for people with Hodgkin's disease.

 

LIVER CANCER

Liver Cancer Network http://www.livercancer.com/index.html The Liver Cancer Network's goal is "to provide liver cancer patients and their families with the basic knowledge needed to better communicate with their physicians and to give patients and families hope for the future."
What You Need to Know About Liver Cancer http://www.cancer.gov/cancerinfo/wyntk/liver This National Cancer Institute (NCI) booklet has important information about cancer that begins in the liver. It discusses possible causes, symptoms, diagnosis, and treatment of liver cancer. It also has information to help patients cope with this disease.

 

LUNG CANCER

American Lung Association Asociación Americana del Pulmón (800) 548-8252 3000 Kelly Lane, Springfield, IL 62711 www.lungusa.org

 

MESOTHELIOMA

Mesothelioma information & Research Group http://www.mirg.org/ This site provides comprehensive information to victims and laypersons about treatments, clinical trials, etc., for Mesothelioma, aterminal cancer of the lung and abdomen.
Mesothelioma & Asbestos Cancer Resource Center  www.asbestos.net
A comprehensive resource on asbestos-related diseases, including thousands of articles, many reviewed by oncologists.  Some videos included.  Free information packet offered.

Mesolink.org  www.mesolink.org Link to Mesolthelioma resources with free information packet available. News, treatment info, health & legal guide plus lots more.

Mesothelioma Center www.Asbestos.com  With more than 3,000 pages of content, this site features information on asbestos, mesothelioma, and other cancers that are caused by asbestos exposure (lung cancer, breast cancer, prostate cancer, etc.).

MYELOMA

International Myeloma Foundation Fundación Internacional del Mieloma (800) 452-CURE (452-2873) 12650 Riverside Drive, Suite 206, North Hollywood, CA 91607-3421 www.myeloma.org www.MyelomaInfo.org This page features information about myeloma, including incidence, symptoms, and treatment.
 

PANCREATIC CANCER

Pancreatic Cancer Action Network Red de Acción del Cáncer del Páncreas (877) 272-6226 2221 Rosecrans Avenue, Suite 131 El Segundo, CA 90245 www.pancan.org
Confronting Pancreatic Cancer http://www.pancreatica.org/ The purpose of this site is to serve as a worldwide focal and gathering point on the Internet for the latest news and disinterested information in regard to clinical trials and other responsible medical care in the treatment of pancreatic cancer. Site includes an FAQ section, searchable clinical trials database, journal and newspaper articles, advocacy organizations, and a set of related links. "Our aim is to try and concentrate practical, impartial, understandable data about pancreatic cancer at this website, in such a way as to allow active patients, their caregivers and/or their physicians to sort through a large amount of information about pancreas cancer quickly."

 

SKIN CANCER & MELANOMA

What You Need to Know About Melanoma http://www.cancer.gov/cancerinfo/wyntk/melanoma The National Cancer Institute (NCI) has written this booklet to help people with melanoma and their families and friends better understand this disease. We hope others will read it as well to learn more about melanoma. This booklet discusses risks and prevention, symptoms, diagnosis, treatment, and followup care. It also has information about resources and sources of support to help patients cope with melanoma.

Legal, Financial & Insurance Help

Note: Listing here does not mean that these sources have been evaluated, approved or endorsed. This is a list of resources that has been compiled for your education.

General Suggestions for Financial Assistance: Community voluntary agencies and service organizations such as the Salvation Army, Lutheran Social Services, Jewish Social Services, Catholic Charities, and the Lions Club may offer help. These organizations are listed in your local phone directory. Some churches and synagogues may provide financial help or services to their members.

Fundraising is another mechanism to consider. Some patients find that friends, family, and community members are willing to contribute financially if they are aware of a difficult situation. Contact your local library for information about how to organize fundraising efforts.

General Assistance programs provide food, housing, prescription drugs, and other medical expenses for those who are not eligible for other programs. Funds are often limited. Information can be obtained by contacting your state or local Department of Social Services; this number is found in the local telephone directory.

What financial questions should I ask the practitioner or his office staff?
Here are some questions to ask the practitioner or his office staff:

  • Do you accept my health insurance?
  • Do I file the claim forms, or do you (the provider) take care of that?
  • What is the cost for an initial appointment?
  • How many treatments will I need?
  • How much will each treatment cost?
  • Can I receive treatment for a trial period to see if the therapy works for me before I commit to a full course?
  • Will there be any additional costs?

 

It can also be useful to ask which insurance plans the practitioner accepts, in case you become interested in changing plans at some point (for example, through a change of employment). If you do not have insurance coverage for treatment, and paying the full fee each time would be difficult for you, you might ask:

  • Can your office arrange a payment plan so that my costs are spread out over a longer period of time?
  • Do you offer a sliding-scale fee? (A sliding-scale fee adjusts charges based on a patient's income and ability to pay.)

 

Does the Federal Government have resources that might help me financially with my health-related expenses?
Currently, Federal health assistance programs are not set up to assist with CAM expenses specifically. They are intended to provide either direct support (direct payments) or indirect support (such as housing or child care credits, medical care at public clinics, or other social services) to people whom the Government determines to be in need. Examples include people who:

  • Have a low income and limited resources.
  • Do not have other medical insurance.
  • Have a disability.
  • Are part of a population that has difficulty accessing medical care.
  • Are at least 65 years of age.
  • Have served in the military.

There are Federal databases on the Internet that can introduce you to these programs. GovBenefits (www.govbenefits.gov) provides an overview and a self-test to help you identify whether any benefits are appropriate for your needs. FirstGov (www.firstgov.gov) has information on various health-related programs such as Medicare and Medicaid. FirstGov also has a database with information on benefits for seniors, http://www.usa.gov/Topics/Seniors.shtml

Corporate Angel Network

A non-profit organization that arranges and coordinates flights for cancer patients using the empty seats available on corporate aircraft. Call 914-328-1313 or info@corpangelnetwork.org Website: www.corpangelnetwork.org

National Patient Travel Center

Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network. Website is www.patienttravel.org. Call the Help Line at 1-800-296-1217 for personal assistance. It is staffed live 9am to 5pm Eastern Time Monday thru Friday. After hours help is available within 10 minutes of leaving an after-hours message marked urgent.

Airlifeline

A free nationwide service that flies qualified patients to treatment centers. Phone 877-AIR-LIFE or www.airlifeline.org

Air Care Alliance http://www.aircareall.org/listings.htm

The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This is a central listing for free air transportation services provided by volunteer pilots and charitable aviation groups. Consult the website to first see if you can solve your need for information using the listings. Then if you have additional questions send an email to mail@aircareall.org or call the toll free number: 888 260-9707

Mercy Medical Airlift www.mercymedical.org

MMA's mission is to facilitate a charitable means of long distance medical air transport for all medically indigent, low-income and financially vulnerable patients in our society thereby ensuring equal access to distant specialized medical treatment or to appropriate facilities and settings for continuing care. Call (800) 296-1217.

The Center for Medicare Advocacy, Inc.

A non-profit organization that provides education, advocacy and legal assistance to help Medicare beneficiaries obtain necessary healthcare. Phone 860-456-7790 or www.medicareadvocacy.org.

Medicaid (Medical Assistance) a jointly funded, Federal-State health insurance program for people who need financial assistance for medical expenses, is coordinated by the Health Care Financing Administration (HCFA). At a minimum, states must provide home care services to people who receive Federal income assistance such as Social Security Income and Aid to Families with Dependent Children. Medicaid coverage includes part-time nursing, home care aide services, and medical supplies and equipment. Information about coverage is available from local state welfare offices, state health departments, state social services agencies, or the state Medicaid office. Check the local telephone directory for the number to call. Information about specific state locations is also available on the HCFA Web site. Spanish-speaking staff are available in some offices. Web site: http://www.hcfa.gov/medicaid/medicaid.htm

Medicare is a Federal health insurance program also administered by HCFA. Eligible inpiduals include those who are 65 or older, people of any age with permanent kidney failure, and disabled people under age 65. Medicare may offer reimbursement for some home care services. Cancer patients who qualify for Medicare may also be eligible for coverage of hospice services if they are accepted into a Medicare-certified hospice program. To receive information on eligibility, explanations of coverage, and related publications, call Medicare at the number listed below or visit their Web site. Some publications are available in Spanish. Toll Free: 1–800–MEDICARE (1–800–633–4227) TTY (for deaf and hard of hearing callers): 1–877–486–2048 Web site: http://www.medicare.gov

The Center for Patient Advocacy

Provides assistance to patients for navigating the managed care health system. Phone 800-846-7444 or www.patientadvocacy.org.

Patient Advocate Foundation

A national non-profit organization that serves as a liaison between patient and insurance company to resolve matters relating to diagnosis. Offers resources such as Patient Pal, a guide to help patients with insurance issues. Call 800-532-5274 or www.patientadvocate.org.

A Cancer Survivor’s Almanac: Charting Your Journey http://www.canceradvocacy.org/resources/pubs/excerpts.aspx

This reference book from the National Coalition for Cancer Survivorship includes thorough and easy to understand information about public and private health insurance, survivorship issues, disability benefits, employment rights and legal and financial concerns. See next listing for order info.

National Coalition for Cancer Survivorship http://www.canceradvocacy.org/

This is the oldest survivor-led cancer advocacy organization in the country and a voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care. In 2004, NCCS believes that access to credible and accurate patient information, such as NCCS’s Cancer Survival Toolbox® is key to demanding and receiving quality cancer care.

What Cancer Survivors Need to Know About Health Insurance

Provides info about health insurance and how to receive maximum reimbursement for claims. For both these publications, contact NCCS at 877-NCCS-YES or www.cansearch.org.

Cancer Care, Inc. Call 800-813-HOPE or www.cancercare.org

A toll-free counseling line staffed with trained social workers who can suggest referrals for financial assistance.

The National Financial Resources Guidebook for Patients

Provides listings of Federal and State resources for obtaining financial assistance for a broad range of needs including housing, transportation, utilities, medical payments and insurance deductibles. Contact the Patient Advocate Foundation at 800-532-5274 or www.patientadvocate.org.

National Association of Hospital Hospitality Houses

Lists more than 150 guest houses in the U.S. that provide family-centered lodging and support services for patients receiving treatment far from home. Call 800-542-9730 or www.nahhh.org.

Social Security Benefits or Supplemental Security Income (SSI)

The Social Security Administration has two programs that pay benefits to people with disabilities:

  • Social Security Disability Insurance (SSDI) pays benefits to disabled workers who have paid into Social Security through payroll deductions and to certain family members.
  • Supplemental Security Income (SSI) pays benefits to people who are elderly or disabled and have low incomes.

You may be eligible for these and also food stamps and Medicaid. Call the Social Security Administration at 800-772-1213 or your local office. Website is www.ssa.gov. Social Security provides a monthly income for eligible elderly and disabled inpiduals. Information on eligibility, coverage, and how to apply for benefits is available from the Social Security Administration. Supplemental Security Income (SSI) supplements Social Security payments for inpiduals who have certain income and resource levels. SSI is administered by the Social Security Administration. Information on eligibility, coverage, and how to file a claim is available from the Social Security Administration.

 

The State Children's Health Insurance Program (SCHIP) is a Federal-State partnership that offers low-cost or free health insurance coverage to uninsured children of low-wage, working parents. Callers will be referred to the SCHIP program in their state for further information about what the program covers, who is eligible, and the minimum qualifications. Telephone: 1–877–KIDS–NOW (1–877–543–7669). Web site: www.insurekidsnow.gov

Veterans Benefits: Eligible veterans and their dependents may receive cancer treatment at a Veterans Administration Medical Center. Treatment for service-connected conditions is provided, and treatment for other conditions may be available based on the veteran's financial need. Some publications are available in Spanish. Spanish-speaking staff are available in some offices. Telephone: 1–800–827–1000. Web site: www.va.gov/vbs

State Departments of Insurance or State Departments of Health

Some states sell special health insurance for people with serious medical conditions who cannot find insurance elsewhere and who are “hard to insure.” Contact your own state for more information.

The Hill-Burton Program

This is a federal program that requires participating hospitals and other facilities to provide a certain amount of free or reduced-fee care to those unable to pay. Not available at all hospitals and each hospital determines what is available. Contact your hospital or the Hill-Burton Program at 800-638-0742 or http://www.ask.hrsa.gov/detail.cfm?PubID=HRS00239

Cancer Treatments Your Insurance Should Cover

Published by the Association of Community Cancer Centers, this brochure describes the minimum standard and investigational treatments that should be covered and what to do if reimbursement is denied. Available at www.accc-cancer.org.

The American Cancer Society (ACS) national office can provide the telephone number of the local ACS office serving your area. The local ACS office may offer reimbursement for expenses related to cancer treatment including transportation, medicine, and medical supplies. The ACS also offers programs that help cancer patients, family members, and friends cope with the emotional challenges they face. Some publications are available in Spanish. Spanish-speaking staff are available. Telephone: 1–800–ACS–2345 (1–800–227–2345) Web site: http://www.cancer.org

The AVONCares Program for Medically Underserved Women provides financial assistance and relevant education and support to low income, under- and uninsured, underserved women throughout the country in need of diagnostic and/or related services (transportation, child care, and social support) for the treatment of breast, cervical, and ovarian cancers. Telephone: 1–800–813–HOPE (1–800–813–4673). Web site: http://www.cancercare.org

The Candlelighters Childhood Cancer Foundation (CCCF) is a nonprofit organization that provides information, peer support, and advocacy through publications, an information clearinghouse, and a network of local support groups. CCCF maintains a list of organizations to which eligible families may apply for financial assistance.
Telephone: 1–800–366–CCCF (1–800–366–2223).
Web site: http://www.candlelighters.org

Patient Advocate Foundation (PAF) 757–873–6668 1–800–532–5274 help@patientadvocate.org http://www.patientadvocate.org

The PAF provides education, legal counseling, and referrals to cancer patients and survivors concerning managed care, insurance, financial issues, job discrimination, and debt crisis matters. The Patient Assistance Program is a subsidiary of the PAF. It provides financial assistance to patients who meet certain qualifications. The toll-free number is 1–866–512–3861.

Special Note --Patient Advocate Foundation's Co-Pay Relief Program (CPR): Patient Advocate Foundation (PAF) announces the expansion of co-payment assistance funding for patients with Kidney Cancer or Sarcoma starting January 4, 2006. (They already provide financial assistance to eligible patients who are being treated for breast, lung and/or prostate cancers, and secondary issues as a result of chemotherapy treatment.) Additional information about the PAF Co-Pay Relief Program can be obtained by calling 866-512-3861 or visiting the website at www.copays.org or www.patientadvocate.org.

Visionary Alternatives, Inc.

May provide some funding for alternative funding choices for patients with life-threatening illness who cannot afford this themselves; also provides other suggestions for reduced costs for treatment. Call toll free at 877-995-2207 or website: www.visionaryalternatives.com

The Leukemia and Lymphoma Society (LLS) offers information and financial aid to patients who have leukemia, non-Hodgkin's lymphoma, Hodgkin's disease, or multiple myeloma. Callers may request a booklet describing LLS's Patient Aid Program or the telephone number for their local LLS office. Some publications are available in Spanish. Telephone: 1–800–955–4572 Web site: http://www.leukemia-lymphoma.org

LifeWise Family Financial Security, Inc.

A lending institution that offers secured no-payment loans for persons with life expectancy of five years or less, using an existing life insurance policy as collateral. If this type of arrangement is desired, inpiduals may also check with their own life insurance companies directly to see if it’s available. Phone 800-794-0090.

Alir Phone toll free: 888-599-1112 Website: www.e-alir.com

This company offers a financial option for people who already own a life insurance policy. A life settlement allows an inpidual to turn an existing policy into an asset that can be used immediately. An investment company, called a funding or provider company, can purchase a life insurance policy from an inpidual. This provides the owner of the policy with a lump sum of cash (discounted from the face amount of the policy) and the end of premium payments. In return the owner relinquishes all rights and future benefits of the policy. Online application available.

Assignable Life Assets 800-334-3211

Another company that offers early life insurance settlements, with cash settlements and cessation of premiums. www.lifeassets.net.

Care Credit www.carecredit.com

A flexible line of credit designed specifically for healthcare needs, providing payment for treatments over time, with no up-front payment required. It's ideal for co-payments, deductibles, and treatments not covered by insurance, such as many alternative modalities or programs. For information call 888-255-4426 or email info@carecredit.com. These credit plans are only available in situations where the doctor or clinic participates in the Care Credit program.

Personal Finance Solutions http://www.p-f-s.com/consumer/

Offers loans and lines of credit for patients, can be used where insurance leaves off, for elective procedures, or for holistic treatments not covered by insurance.

Be Prepared: The Complete Financial, Legal and Practical Guide for Living With a Life-Challenging Condition by David S. Landay.

Although not cancer-specific, this book offers excellent easy to understand and practical guidance.

How to Find a Holistic or Alternative Physician

NOTE: Most larger communities have a holistic/alternative publication of some kind, generally available at local health food stores, “new age” type stores or large holistic centers/clinics. Practitioners advertise and are listed or written about within these types of publications, so this is a good place to start your search for local options.  You can also consult the "Links" page on this website, or an online regional/local resource directory such as the Natural Lifestyle Network (www.NaturalLifestyle.net).

The American College for Advancement in Medicine 23121 Verdugo Drive, Suite 204 Laguna Hills, CA 92653 Fax: (949) 455-9679
American Academy for Advancement in Medicine (ACAM): A not-for-profit medical society dedicated to educating physicians and other health care professionals on the latest findings and emerging procedures in preventive/nutritional medicine. ACAM represents more than 1,000 physicians in 30 countries and there is a searchable database available on their website at www.acam.org.

American Holistic Medical Association: They have a Directory of members throughout the country, but request a payment of $15 to obtain a copy. Website is www.holisticmedicine.org. Email: info@holisticmedicine.org For an AHMA Referral Directory, send a check or money order for $15 to: 12101 Menaul Blvd., NE, Suite C, Albuquerque, NM 87112 State that you are requesting a copy of the AHMA Referral Directory and include clearly printed shipping information. Phone: (505) 292-7788 There is also an online searchable referral database.

American Academy of Environmental Medicine: 701 E Kellogg, Suite 625 Wichita, KS 67207 Phone: (316) 684-5500 Fax: (316) 684-5709 Email: administrator@aaem.com Website: www.aaem.com A medical society that focuses on the prevention and treatment of disease and imbalances in the body resulting from environmental stressors and toxins. These can include both internal (psychological, genetic, malnutrition, biological mechanisms etc.) and external (organic inhalants such as dusts, molds, pollens; chemicals; infectious organisms; radiation; toxins and pesticides; electro-magnetic fields; etc.) components. There is an online database of Academy members who have successfully completed the Core Curriculum (consisting of four instructional courses) searchable by state or country. Referrals can also be requested by emailing referral@aaem.com.

American Association of Naturopathic Physicians: Founded in 1985, the American Association of Naturopathic Physicians (AANP) is the national professional society representing naturopathic physicians who are licensed or eligible for licensing as primary care providers, following a four-year educational program, similar to a four-year medical degree. Naturopathic medicine blends centuries-old natural, non-toxic therapies with current advances in the study of health and human systems, covering all aspects of family health from prenatal to geriatric care. ND’s are the family practitioners of the alternative medicine field, studying herbology, homeopathy, nutrition, detoxification procedures, etc. Naturopathic medicine concentrates on whole-patient wellness-the medicine is tailored to the patient and emphasizes prevention and self-care. Naturopathic medicine attempts to find the underlying cause of the patient’s condition rather than focusing solely on symptomatic treatment. Naturopathic physicians cooperate with all other branches of medical science referring patients to other practitioners for diagnosis or treatment when appropriate. 8201 Greensboro Drive, Suite 300, McLean, VA 22102 Phone: (703) 610-9037 Fax: (703) 610-9005 Website: www.naturopathic.org There is a searchable database located at www.healthy.net/aanp/aanpsearch.htm. NOTE: Not all practitioners who use the title of naturopath have attended a four-year degree program and some degrees in this field are available through distance learning certification programs. Be sure to ask what training your practitioner has obtained if this is important to you.

 

How to Choose a Holistic/CAM Practitioner

From the American Holistic Medical Association website: www.holisticmedicine.org

Your first responsibility as a patient/client is to select a practitioner who will join your "team" to support you in obtaining and maintaining optimum health for your body, mind, emotions and spirit. While most holistic practitioners use modalities that are currently labeled "alternative medicine," the interests and practices of our members vary widely. Thus, one person might work primarily with nutrition and herbs, while another might look mainly at the spiritual aspects of health and disease. Other areas of interest include spinal manipulation and bodywork, "energy medicine," mind-body medicine, acupuncture and stress management. It is important to remember that there are many different definitions of holistic medicine. When choosing a practitioner, make sure that individual has the same type of philosophy and uses the treatment modalities you are seeking.

The following considerations are offered as a guide to help you find a practitioner with whom you are comfortable. Optimum health is more likely to be present when you work with someone who is supportive of your efforts to be in charge of your life. Some of the criteria may not apply to all situations.

  • Does this practitioner have health professional relationships with others? How did you hear about this practitioner? A personal referral is often more powerful than a professional referral. What do friends and other professionals say about this person? How does he/she feel about second opinions or your interest in alternative health care therapies/treatments? What technical certifications, professional organizations or hospital affiliations does this practitioner have?
  • How do YOU respond to this practitioner's office and staff? This environment reveals his/her attitudes and beliefs. Do you feel comfortable and cared for when you call or visit the office? Does the ambiance enhance that comfort? Does the staff further your sense of well being? Are educational handouts available in the office or waiting room? Is your appointment time honored or do you have to wait?
  • Do you feel like a valued person working as a partner with this practitioner? Healing is enhanced by a healthy relationship between patient/client and practitioner. Do you feel this practitioner is there for you? Do you feel trust and confidence? Does he/she seem to care about you, take your medical history personally and show an interest in your family, lifestyle and diet? Are you told about various treatment options? Do each of you recognize that you need the other? Is the practitioner accessible? Are you able to discuss the financial aspects of your care openly and comfortably? Positive answers to these questions are evidence of your rightful place as a co-creator of this healing partnership.
  • Is your personal dignity respected? Any examination or interaction should be respectful of your personal dignity.
  • Does this practitioner honor your anxieties and fears? Is this practitioner sensitive enough to place him/herself in your position regarding fears and anxieties about an illness or proposed treatment?
  • What is the state of this practitioner's health? Does he/she appear to have a healthy lifestyle? Signs of overweight, overwork, smoking or drinking may indicate that he/she does not take care of him/herself. You will probably do best with a team member who is just as committed to good health as you are. The Biblical statement, "Physician, heal thyself," is paramount in a health-filled relationship.
  • Are you allowed time between diagnosis and treatment? Does this practitioner allow you the time to collect the educational and personal resources that you need to make a well informed decision?
  • Are you treated as if this is an important, ongoing relationship? Are you notified of test results within a reasonable period of time? Are follow-up visits scheduled after treatment? Is there discussion of future health goals and not just the immediate matter at hand?
  • Do you feel unconditionally accepted by this practitioner? Unconditional acceptance allows you to get well in your unique way. Do you feel that you are accepted no matter what develops, no matter what decisions you make? Can the practitioner approach your care with an open mind, rather than with a predetermined treatment plan? Would the practitioner offer to a member of his/her own family the same carefully chosen advice that he/she has offered to you?
  • Would you send the person most dear to you to this practitioner? Do you have such a strong feeling of caring, confidence and trust in this practitioner that you would send to him/her, with no misgivings, the person who is dearest to you? If so, then you have found that special person to be on your health team.

Selecting a CAM Practitioner

See http://nccam.nih.gov/health/practitioner/index.htm (from the National Center for Complementary & Alternative Medicine/NIH website)

Selecting a health care practitioner--of conventional or complementary and alternative medicine (CAM)--is an important decision and can be key to ensuring that you are receiving the best health care. The National Center for Complementary and Alternative Medicine (NCCAM) has developed this fact sheet to answer frequently asked questions about selecting a CAM practitioner, such as issues to consider when making your decision and important questions to ask the practitioner you select.

How to Find a Hospital Cancer Treatment Center

NOTE: These resources are generally not alternative or holistic in their approach and can be considered traditional or conventional treatment facilities.  Increasingly, many now offer complementary treatment options as well.

http://www.accc-cancer.org/cancercenter/default.asp Website for the Association of Community Cancer Centers’ database searchable by state. ACCC Institution/Group Practice members include more than 650 medical centers, hospitals, oncology practices, and cancer programs across the United States. Together, this group of organizations sees more than 40 percent of all new cancer patients in the United States each year. In addition, many state oncology societies, physician groups, medical and radiation oncologists, and others associated with cancer care, have already chosen to become members.

http://www3.cancer.gov/cancercenters/centerslist.html The Cancer Centers Program of the NCI (National Cancer Institute) supports cancer research programs in approximately 60 institutions across the United States through P30 Cancer Center Support Grants. This is the link for their database, searchable by state.

http://www.cancercenter.com/patient-services/online-cancer-decide-guide.cfm The Cancer Treatment Centers of America (offering conventional and complementary treatment options) offers this excellent downloadable Decision Guide for finding the best doctor, hospital or clinic treatment center for you. Note that this is a more conventional or complementary orientation to treatment options, however it highlights the key principles to manage the cancer decision-making process and offers some very helpful tools, worksheets and methods for making comparisons between several options.

Books, Videos & DVDs for Cancer Patients

EXCELLENT BOOKS FOR CANCER PATIENTS

Cancer: 50 Essential Things to Do
by Greg Anderson

Written by a lung cancer survivor who was once given 30 days to live, this book contains an excellent overview of the many components of an action plan for healing. Easy to read and understand—a great book for someone just diagnosed and beginning the cancer journey to overcome hopelessness or inertia.

The 22 Non-Negotiable Laws of Wellness
by Greg Anderson

Empowering book with a comprehensive, easy to follow, and concise description of what healing is truly about: that everything we think, say, feel, and do has a direct impact on our physical and emotional health—yet we overlook this fundamental truth every day. Contains one of the best stories we have encountered concerning the powerful role of forgiveness in healing and wellness, and how the author experienced this as the pivotal turning point in overcoming his late-stage terminal cancer.

The Cancer Conqueror
by Greg Anderson

Another great book and modern-day parable. This is the story of one cancer patient’s search for help and healing, and the teachers he meets along the way. Simple and easy to read and great for newly diagnosed patients. Available from The Cancer Recovery Foundation at: 717-545-7600 or on the website: www.cancerrecovery.org

Cancer as a Turning Point: A Handbook for People with Cancer, Their Families and Health Professionals
by Lawrence LeShan, PhD

Written by a psychotherapist who has worked with cancer patients for over 50 years, this classic book written by the “father of mind-body therapy” demonstrates how psychological change, together with medical treatment, can mobilize a compromised immune system for healing.

Beating Cancer with Nutrition
by Patrick Quillin, PhD

There is a new and revised edition with a great deal of excellent information and research on nutrition, detoxification, healing diet, and supplementation. Written in a very readable style by the Director of Nutrition for Cancer Treatment Centers of America. Includes a CD.

The Journey Through Cancer: Healing & Transforming the Whole Person
by Jeremy Geffen, MD

An excellent book written by a board-certified oncologist with a background in integrative medicine, Eastern philosophies and complementary and alternative therapies. Geffen presents an inspiring and practical holistic cancer treatment model that can be accomplished within the context of modern medicine and modern life. Includes great chapters on "Emotional Healing" and "The Nature of Mind." Geffen explains why, after physical needs are handled, it is vital for cancer patients to turn inward: "Now the journey through cancer becomes less about cells, chemicals and diets and more about thoughts, feelings and emotions."

Feelings Buried Alive Never Die
by Karol Truman

Highly recommended by Dr. Mercola (http://www.mercola.com/2003/jan/25/truman_book.htm), this book explains how our unresolved emotions directly contribute to the diesease process and why they must be dealt with for long-term healing to take place. The author offers easy to use methods for transforming these undesireable feelings to they no longer hinder healing. Excellent resource.

Love, Medicine & Miracles
by Bernie Siegel, MD

Lessons learned about self-healing from exceptional cancer survivors by this well-known surgeon turned mind/body/spirit healer and teacher. Unconditional love is the most powerful stimulant of the immune system. The truth is: love heals. Miracles happen to exceptional patients every day—patients who have the courage to love and those who have the courage to work with their doctors to participate in and influence their own recovery. There are many other great works from Bernie (all highly recommended) including Humor and Healing and an audiotape: “Meditations for Enhancing Your Immune System: Strengthen Your Body’s Ability to Heal.”

The Definitive Guide to Cancer
by Burton Goldberg

Offers an overview of the specific cancer treatment protocols of 23 alternative physicians and other practitioners, as well as detailed explanations of many of the modalities used. A good place to start learning about alternative cancer treatments in clinical practice. One chapter is devoted to Dr. Douglas Brodie’s protocol.

Anatomy of an Illness
by Norman Cousins

A short book and fast read. This is the man who taught us about the value of laughter and humor in healing, but this book is much more. It will make you think about the role your thoughts, attitudes, and emotions play in your health and ultimate well-being.

Quantum Healing: Exploring the Boundaries of Mind-Body Medicine
by Deepak Chopra, MD

Chopra asks an interesting question: Why, when your body mends a broken arm, is it not considered a miracle, but when your body heals itself from cancer-- it is? Chopra believes the two phenomena spring from the same source, that the body is capable of doing much more than we assume it can. He calls this ability to cure disease from within “quantum healing,” and shows how we are all capable of it. He believes intelligence exists everywhere in our bodies, in each of our 50 trillion cells, and that, therefore, each cell has the ability to heal itself.

Healing Words: The Power of Prayer and the Practice of Medicine
by Larry Dossey, MD

This book studies the link between medicine and spirituality, and the healing power of prayer. Prayer heals? Hardly news in the religious world, but for modern science, it is a revelation, one confirmed by dozens of laboratory experiments that Dossey cites. Prayer can help with most forms of disease; it can alter enzyme activity, blood cell growth, and even the germination of seeds. Another good read along these lines: Prayer Is Good Medicine, also by Dossey.

Molecules of Emotion: The Science Behind Mind-Body Medicine
by Candace Pert, PhD

The first book to scientifically explain and document exactly how our thoughts and emotions affect our physical health, and how the mind and body function together as parts of an interconnected system. Pert uses understandable terminology to explain the neuropeptide system as the carrier of the emotions throughout the entire body. Pert’s discovery that neurotransmitters are found not only in the brain but also in the gut, the endocrine system, and the nervous system throughout the body, is the clearest proof to date that our emotions and thoughts have a direct and powerful effect on our health. Also by Dr. Pert: Your Body is Your Subconscious Mind: New Insights Into the Body/Mind Connection.

The Biology Of Belief: Unleashing The Power Of Consciousness, Matter And Miracles
by Bruce Lipton, PhD

This book will forever change how you think about your own thinking. Stunning new scientific discoveries about the biochemical effects of the brain’s functioning show that all the cells of your body are affected by your thoughts and feelings. The author, a renowned cell biologist and former medical school professor, describes the precise molecular pathways through which this occurs. He demonstrates how the new science of epigenetics is revolutionizing our understanding of the link between mind and matter, and the profound effects our thoughts and feelings have on our lives and our health. The book's synthesis of the latest and best research in cell biology and quantum physics is a major breakthrough showing that our bodies can be changed as we retrain our thinking.

The Type C Connection: The Behavioral Links to Cancer and Your Health
by Lydia Temoshok, PhD and Henry Dreher

In agreement with Dr. Douglas Brodie’s empirical observations on the personality traits common to cancer patients, the authors describe the cancer-prone personality (Type “C”) as those who typically have trouble expressing emotions; that deny anger or other negative emotions, and who generally try to help others at their own expense. The authors show how the immune system works. They describe how not shutting yourself down emotionally and expressing your needs, anger, etc., can actually boost your immune system to fight cancer. An out-of-print book but you can find copies on Amazon.com and elsewhere.

Remarkable Recovery: What Extraordinary Healings Tell Us About Getting Well and Staying Well
by Caryle Hirshberg and Marc Ian Barasch

A compilation of scores of stories of spontaneous remission and other socalled anomalies in the recovery of terminal cancer patients. If you are looking for hope in the face of dire medical prognosis, here it is, documented by medical experts. Cases of patients who unexpectedly survive a terminal disease happen more often than is believed, and this book gives fully detailed histories of a number of long-term survivors. In fact, the authors show us that remarkable recoveries are much more than remissions and anything but spontaneous. They feel that these cases are clear demonstrations of the ability of the human body, mind, and spirit to heal itself.

Mind-Body Unity: A New Vision for Mind-Body Science and Medicine
by Henry Dreher

Over the past twenty years, an explosion of scientific studies has helped to explain why our emotional and mental states may exert such a strong influence on the state of our health. Dreher argues that our minds play a role in our health the way our eyes play a role in our sight. He discusses remarkable findings on the role of emotions, coping, and personality in cancer progression and survival. He describes mind-body approaches to the treatment of cancer and other health conditions.

The Creation of Health: The Emotional, Psychological and Spiritual Responses That Promote Health and Healing
by Caroline Myss, PhD and C. Norman Shealy, MD

This is the unusual pairing of a well-known medical intuitive/theologian with a conventionally-trained neurosurgeon and past President of the American Holistic Medical Association. As a team that has worked with patients for many years, they explore the link between emotional dysfunction and physical illness; the emotional, physical, and spiritual patterns that form health; and the stresses that can cause disease. Other books by Caroline Myss: Why People Don’t Heal and How They Can and The Energetics of Healing.

Heal Your Body: The Mental Causes for Physical Illness
by Louise Hay

An easy read, this book offers positive new thought patterns to replace negative emotions. It includes an alphabetical chart of physical ailments, the possible mental/emotional causes, and healing affirmations to help you eliminate old patterns. Louise Hay healed herself by using these techniques.

The Art of Forgiving: When You Need to Forgive and Don’t Know How
by Lewis B. Smedes

“When we forgive,” Smedes says, “we set a prisoner free and discover that the prisoner we set free is us.” He teaches the reader that more than anything else, forgiveness is a way of healing. If you are ready to make peace with those who have hurt or betrayed you, then this practical book can be your roadmap.Dramatic examples from real life situations are used.

Living Well with Cancer
by Katen Moore, RN, AOCN, MSN and Libby Schmais, MFA

Written by an oncology nurse and medical researcher, this book addresses the side effects of medical treatments—from aches and pains to nausea, fatigue, fear, and depression, with down-to-earth recommendations. It addresses healthcare issues rarely discussed in standard medical texts, including guidance on exercise, rest, nutrition, sex, and emotional issues. Includes a resource guide to helpful organizations and literature—lots of practical advice.

Hungry for Health
by Susan Silberstein, PhD

A practical lesson in healthful eating from the Executive Director of the Center for Advancement in Cancer Education. Great for anyone who wants to eat better, but doesn't know where to start. Based on four fundamental principles for preventing disease, enhancing wellness or facilitating healing. Contains 157 no-guilt recipes with lots of tasty tips and “nutri-notes.” Based on Dr. Silberstein’s 29 years of experience with nutrition and cancer patients, although anyone who wants improved nutrition will benefit. Order online at www.beatcancer.org or call 610-642-4810.

Buy Now

Natural Compounds in Cancer Therapy
by John Boik

The ultimate reference book in understanding the use of natural botanical compounds in cancer therapy. A powerful starting point for cancer protocols involving vitamins, herbs, and other natural products.

Prescription for Nutritional Healing
by Phyllis Balch, CNC and James Balch, MD

This is the “bible” of reference books for nutritional guidance, organized by specific condition or disease, with an extensive list of recommended nutritional (drug-free) supplements, including vitamins, minerals, herbs, and other items. Includes scientific descriptions and uses of all supplements, as well as food recommendations, and other important considerations. Excellent resource to have on hand, and a great starting point to educate and inform. Updated regularly, current version is the fourth edition, out in late 2006.

Be Prepared: The Complete Financial, Legal and Practical Guide for Living With a Life-Challenging Condition
by David S. Landay

Although not cancer-specific, this book offers excellent easy-to- understand and practical guidance.

 

VIDEOS/DVD’s

Breast Cancer: The Diet Connection--DVD or VHS
by Susan Silberstein, PhD,

Executive Director of the Center for the Advancement in Cancer Education.

Breast Cancer: The Diet Connection--DVD or VHS
The video outlines easy dietary steps to help prevent cancer or its recurrence; the information can be applied to all types of cancer, enhancing immune response and wellness. It is an excellent plan, based on Dr. Silberstein’s 28 years of experience with over 25,000 cancer patients, and as many years studying and teaching proper nutrition. Includes references for research studies.

Buy Now

What the Bleep Do We Know!?

What the Bleep Do We Know!?This is a groundbreaking documentary/movie that is an entirely new type of film. It uses entertaining visual effects and story-telling to demonstrate the tenets of quantum physics and how they are actually the force behind the creation of our daily lives. Interviews with award winning physicists and other notable researchers and scientists, such as Candace Pert, are woven provocatively throughout the movie. If you would like to know more about the science behind how our thoughts and emotions create our reality, including our state of health, then you need to see this film.

Buy Now

The Secret
The Secret
Order the DVD or watch it online one time for $4.95--but definitely watch it! This is a fascinating and powerful look at how positive thoughts and emotions truly create the life and health we desire. Uplifting and inspirational. Just go ahead and order it, you'll probably want to watch it several times.

Buy Now

 

CD's

Kitchen Chemotherapy
by Susan Silberstein, PhD

Based on thousands of articles published in the scientific literature documenting the relationship between diet and cancer survival, this 79-minute CD highlights a dozen advantages of implementing nutrition in a cancer treatment program, outlines foods that promote or suppress tumor growth, and explains the connection between cancer and biological terrain. Purchase online at www.beatcancer.org or call 610-642-4810.

Buy Now

Cancer Meets Inquiry
by Byron Katie

You should probably read Katie's first book, "Loving What Is" before listening to this CD. What Katie calls "the work" is the basis for what she calls "inquiry" in order to shift our thoughts around any situation in life--including cancer. Inquiry brings to light our personal obstacles to clarity, self-realization and personal freedom. And what Katie shows us, in a moving, loving way, is that there's nowhere else to go in this process but inside ourselves. Healing isn't "out there" somewhere, it's within us. Perception is everything and this process is a powerful and intriguing way to perceive your cancer and healing journey--and just about everything else about your life. What is cancer for? Katie suggests it's the help us reconnect to our own center--to who we really are--and ultimately to God. This is a bit like Buddhism meets Course in Miracles--profound and life altering. www.thework.org

How & Where to Research Health Info Online

Some governmental or professional medical search engines are directed at health professionals and scientists, but with some careful reading, we "civilians" can glean what is needed in most cases.

PubMed: The National Library of Medicine

PubMed lets you search more than 16 million bibliographic citations and abstracts in the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and preclinical sciences. It provides access to MEDLINE® and to articles in selected life sciences journals not included in MEDLINE. PubMed is a free resource. It was developed and maintained by the National Center for Biotechnology Information (NCBI) at the U.S. National Library of Medicine (NLM) located at the National Institutes of Health.

PubMed Quick Start Tutorials
This is an excellent overview of how to use PubMed and includes a link for a short video presentation. There are extensive links for additional instruction. A great starting point in your search.

PubMed Animated Tutorials
A list of all the videos available on most aspects of searching on PubMed.

CAM on PubMed
If you're mainly interested in CAM (complementary & alternative medicine) options, then this is the place to start. NCCAM and the National Library of Medicine (NLM) have partnered to create CAM on PubMed, a subset of NLM's PubMed. Your free literature search will be automatically limited to the complementary and alternative medicine (CAM) subset of PubMed.

MedlinePlus
www.medlineplus.gov

A vast searchable database that will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from National Library of Medicine (NLM), the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news. It contains extensive health information from the world's largest medical library, the National Library of Medicine.

MedlinePlus has extensive information from the National Institutes of Health and other sources on over 700 diseases and conditions. There are also lists of hospitals and physicians, a medical encyclopedia and a medical dictionary, health information in Spanish, extensive information on prescription and nonprescription drugs, health information from the media, and links to thousands of clinical trials. MedlinePlus is updated daily and there is no advertising on this site, nor does MedlinePlus endorse any company or product.

MedScape
www.medscape.com

One of the largest collections of professional medical information on the internet from WebMD. Keep up to date on the latest developments in your medical area of interest. Medscape has daily medical news updates you can subscribe to if interested.

How to research medical information using professional database/search engines:

http://www.niams.nih.gov/hi/topics/howto/howto.htm
Although this is not a cancer-related website, it gives some excellent information about searching for health-related information in general.

Searching on Google
http://www.google.com/support/bin/topic.py?topic=352

Not health-specific, but there are links here for how to do basic and advanced searches on this global search engine.

Clinical Trials Information

Much of the following general information regarding clinical trials comes from the website of The Cancer Research Foundation of America at http://www.crfa.org. The Cancer Research Foundation of America (CRFA) is a national, non-profit health foundation with a single mission: the prevention and early detection of cancer through scientific research and education. The following series of questions and answers provides information about cancer-related clinical trials. These explanations are designed to educate eligible participants about opportunities for becoming involved in cancer studies and to help them make an informed decision about enrolling in a clinical trial.

What is a clinical trial?

A clinical trial is one of the final steps in translating laboratory research into new ways to prevent and treat disease. People enrolled in clinical trials help doctors find ways to improve health and cancer care. These trials are crucial for finding new cancer treatments and for determining which treatments are best suited for individual patients. Clinical trials, which are also called clinical studies and research protocols, answer scientific questions that help confirm that promising cancer advances are indeed safe and effective. Each study examines a different approach in hopes of finding better strategies for cancer prevention, diagnosis and treatment.

What are the different types of clinical trials that focus on cancer?

There are four different types of cancer trials.

  1. When people talk about clinical trials, they are most likely referring to treatment trials, which test new cancer treatments. Treatment trials evaluate the effectiveness of new cancer drugs, new types of surgery and radiation therapy, different combinations of treatments and new methods (like gene therapy) for stopping or reversing the course of disease.
  2. Prevention trials test strategies for reducing people’s risk of certain types of cancers. These strategies include the use of preventive agents, including dietary supplements—like vitamins, minerals and medicines—and lifestyle changes. Some prevention studies focus on preventing cancer in people who have never had the disease, while others try to reduce the chance of recurrence once a cancer has successfully been treated.
  3. Screening trials explore the best ways to find cancer in its early, most treatable stages.
  4. Quality of life/supportive care trials examine ways to make the lives of people with end-stage cancer as comfortable as possible and to help them maintain a high quality of life despite their disease.

Each clinical trial has its own list of criteria that people must meet in order to be eligible to participate in a study. For treatment trials, the eligibility requirements most likely designate that participants have a specific cancer type and stage. Other types of cancer trials, like screening, might only have an age requirement. Each clinical trial protocol lists the study’s eligibility requirements. Eligibility criteria are important to a study’s success. One reason why clinical trials include people with specific indications is that treatments are generally designed for only a select group of patients. Just as a doctor wouldn’t prescribe cough syrup to clear up a case of pink eye, researchers do not include patients in clinical trials of treatments from which they are not likely to benefit, and may even experience unpleasant side effects.

Another reason why clinical trials have such strict eligibility criteria is that the success of studies is based on statistically significant data. Depending on the number of patients included in a study, a certain proportion of its participants must demonstrate some benefit of treatment—or the drug being tested will not receive approval for widespread use. It is therefore important that a trial’s eligibility criteria restrict its group of participants to those who are most likely to improve from the treatment being tested.

How are clinical trials planned and carried out?

Long before a drug or procedure is given to people enrolled in a trial, scientists have examined it in several types of laboratory studies. These laboratory studies are completed not just once, but several times to try to ensure that the end result is reliable, reproducible and beneficial.

At this point, researchers develop a plan for the trial—called a protocol—that spells out the following details about how the study will be carried out:

  • The reason behind the study and its underlying hypothesis (what the investigators think will happen)
  • How many people need to enroll in the study (to make its results statistically significant)
  • Who is eligible to participate in the study
  • What drugs, if any, the participants will take or are taking
  • What medical tests the participants will undergo and how often
  • What types of information and data will be gathered

To determine the effectiveness of a particular agent, a clinical trial will compare its effect to that of the best existing alternative. To make the comparison as accurate as possible, researchers often randomize participants into clinical trial protocols. Generally speaking, randomization means that half of a trial’s participants (often called the treatment or study group) are selected on a random, unbiased basis to receive the new agent and the rest of the participants (the control group) receive the current best treatment standard.

Researchers in charge of the study look at the groups to make sure that there are no significant differences in their participants’ characteristics (age, sex, weight, etc.). The composition of the experimental and control groups are normally as similar as possible so that differences in outcome can be ascribed to the treatment. Sometimes the assignment of participants is double-blinded, so that the doctors who see the patients do not know in which treatment group their patients are enrolled. This is to help ensure that the data collection is unbiased. In blinded studies, patients do not know to which group they have been assigned, but the doctors do.

All centers and medical facilities that take part in a clinical trial follow the same protocol to make sure that all participants receive the same quality of care. Before enrolling in a clinical trial, however, participants must grant their informed consent to be part of the study.

What, exactly, is informed consent?

Informed consent is a safeguard that protects clinical trial participants. While informed consent does involve participant signing of an official document that lists the details of a trial and explains their rights, it entails much more than the initial agreement. Informed consent documents include the following general types of information:

  • Purpose of a clinical trial
  • Treatment procedures and schedule
  • Potential risks and benefits
  • Participant rights
  • Alternatives to participation
  • Contact information for ongoing communication about the trial

Informed consent is an interactive process in which the researchers provide ongoing explanations about the trial so that participants can make educated decisions about not only beginning, but also continuing with a study. Health care providers relay updates to participants and are available to answer questions or address concerns before, during and after the trial.

Because clinical trial participation is voluntary, people enrolled in clinical trials have the right to change their mind if they do not want to continue.

What are the different phases of clinical trials?

Clinical trials for cancer treatments generally progress in the same series of steps, called phases. Almost all clinical trials go through the following three phases before approval:

  1. Phase I trials are the first studies on human subjects. The primary objectives of phase I trials are to predict outcomes and evaluate side effects. These studies also determine the best way to administer drugs (by mouth, infused in the blood or injected into muscle), how often to administer drugs and what is the maximum safe dosage (since higher doses of most types of treatments are usually better at combating disease). Phase I trials typically enroll a small number of patients, sometimes as few as a dozen.
  2. After Phase I trials demonstrate that a treatment is safe, phase II trials are conducted to show that it is effective. Researchers continue to monitor safety during phase II trials, in addition to identifying which cancers are most successfully treated with the drug. A larger number of participants are involved in these trials, which may discover less common side effects.
  3. If a significant proportion of the participants enrolled in phase II trials respond to the treatment, phase III trials are used to compare the effectiveness of the treatment to those currently available to patients and to monitor the treatment’s side effects. Phase III trials enroll large numbers of participants—often hundreds or thousands of people—in doctors’ offices, clinics and cancer centers nationwide. Participants are randomly assigned to receive either the standard treatment, or the new, possibly better treatment.

If the phase III trial demonstrates that a treatment is better than the standard, researchers submit detailed results of the trial to the U.S. Food and Drug Administration (FDA), which scrutinizes the findings to determine if the results show a significant clinical benefit.

Once a treatment has FDA approval, the company that developed it can make it available for widespread use by the general public. Even after a drug has received FDA market clearance, however, the FDA continues to monitor the drug in phase IV trials to evaluate its long-term effects and cost-effectiveness. If dangerous or long-term side effects are found during these post-approval trials, the drug is taken off the market.

Who sponsors clinical trials?

Sponsors of clinical trials want to find better cancer treatments, explore possibilities for preventing cancer or improve screening and early detection. Trials are sponsored by government, industry and academic medical centers. Pharmaceutical companies and manufacturers of diagnostic technologies (for example, mammography equipment) that sponsor trials of their products must prove to the FDA that their products are both safe and effective. Many cancer-related clinical trials are sponsored by the National Cancer Institute (NCI), which is trying to expand access to clinical trials so that there will be more opportunities for patients who could potentially benefit from investigational therapies or procedures.

What regulations are in place to help make clinical trials safe?

Strict federal guidelines safeguard clinical trial participants by requiring that independent committees called Institutional Review Boards (IRBs) oversee clinical trials. There are over 3,000 IRBs in the United States that are typically comprised of a mix of local physicians, scientists, patient advocates, ethicists and administrators. IRBs are responsible for clearing study protocols before they are launched and closely monitoring trials after they are approved to ensure that participants are not exposed to excessive or unnecessary risks.

All clinical trials funded by the U.S. government—including all NCI trials—are subject to strict review by the Office of Human Research Protections of the U.S. Department of Health and Human Services.

In addition to these guidelines, the NCI has also established a quality assurance program that uses on-site monitoring of an institution’s clinical trial procedures, documents and data. During these checks, officials look for compliance with IRB and informed consent requirements; proper shipping, storage and administration of drugs; consistent process evaluation; and acceptable patient responses to treatment.

If IRBs or other groups that monitor data safety observe any of the following situations during the course of their reviews, they will stop the trial early to protect the clinical trial participants:

  • Evidence shows that risks of a treatment outweigh benefits
  • Participants are reporting unexpected or severe side effects
  • The experimental treatment is clearly less effective than the existing treatment.

On the other hand, IRBs can also end a trial early if the there is significant evidence early-on that a new intervention is effective so that it can be made available to the general public as quickly as possible. For example, Gleevec, a molecular-target therapy for a rare form of leukemia, was approved after phase II trials showed that it virtually eliminated all traces of the disease in all but one of the participants.

Why are clinical trials necessary?

Clinical trials are necessary to make sure new treatments, preventive agents and other medical advances are safe and beneficial before they are widely distributed. They also help health care professionals determine for what groups of people treatments work best and what doses can best help patients.

Cancer patients can benefit from trials because they are given either the existing standard of care or a promising new advance that researchers believe—and previous studies have suggested—could be even better than the existing treatment.

However, no one can accurately predict whether the experimental treatment will in fact be beneficial. Those considering enrolling in a trial should learn as much as they can about a study’s potential risks and benefits so that they can make an educated decision about whether or not to participate. The informed consent process furthers patient education and ultimately provides the context for making a decision.

What are the potential risks and benefits of clinical trials?

People choose to participate in clinical trials for many different reasons. Potential benefits associated with joining a clinical trial include:

  • Health care provided by leading physicians
  • Access to new drugs and interventions that are not yet widely available
  • Close monitoring of your overall health that involves addressing any side effects
  • Taking a proactive role in your own health care
  • Being among the first to benefit from promising medical approaches
  • Making a valuable contribution to cancer research

Although the agents examined in clinical trials have already gone through preliminary studies, they have not been tested on large numbers of people. For this reason, participating in a clinical trial can involve the following risks:

  • Unintended side effects of new drugs and procedures
  • New approaches may be ineffective in treating a disease or less effective than the current treatment standard.
  • Even if others benefit from the advance, it might not work for you.

Could I receive a placebo?

A placebo is a “sugar” or “dummy” pill that contains inert, inactive ingredients. Placebos are given to control-group participants in some blinded and double-blinded trials to gauge the effectiveness of possible treatments. While placebos are common in prevention trials, they are virtually never used in treatment trials, especially cancer-related trials.

The top priority of people involved with clinical trials is giving participants the best possible care. Therefore placebos—which contain no disease-fighting agents—are used in cancer treatment trials only if there is no existing treatment for the specific cancer targeted in the study.

To reiterate: cancer-related treatment trials almost never involve placebos. They would only be used for a study testing the effectiveness of a drug designed to treat a disease for which there is no treatment currently available. In this case, the participants randomized to the control group would receive a placebo, while those assigned to the treatment group would receive the drug being tested. If there is a possibility that participants will receive a placebo, it will be included in the protocol and it will be explained during the informed consent process. Therefore people will know they have a chance of receiving placebos before they decide to participate in the study.

When you decide to join a clinical trial, in essence you join a research team whose overarching goal is to fight cancer. You will work with a well-qualified group of health care professionals that may include doctors, nurses, social workers, dieticians and patient advocates. Depending on the type of trial, you could receive your care at a large cancer center, a university hospital, a local medical center or at your physician’s office.

The clinical trial team will administer any treatments or tests, monitor your progress and give you instructions about what you will need to do for the study. Because clinical trial participants are followed so closely and given a high level of individualized attention, participating in a trial might involve more appointments, doctor visits and tests than if you were not in a study. People involved with the study will continue to stay in touch with you after the trial ends to follow-up on the long-term effects of the intervention you received. Many participants involved in clinical trials enjoy this personalized care.

To ensure that the trial results are as reliable as possible, participants are expected to follow the research team’s instructions. That involves attending scheduled doctors’ appointments and tests, taking medicines on time, and completing logs or questionnaires if asked to do so. Your health care providers will relay your clinical responses to the center responsible for coordinating the study and analyzing the data of all the trial’s participants. After the trial is over, the trial researchers will use all the reported information to evaluate the effectiveness of the intervention tested in the study and recommend whether or not it should be available for widespread use.

Therefore, by joining a clinical trial, a participant not only takes an active role in his or her own health care, but also helps others fight future battles with cancer.

How do I join a clinical trial?

Your health care provider can help you locate trials you are eligible to join and can help you enroll in a study. Remember that the types of trials you are eligible for will depend on your medical history. Cancer prevention trials typically enroll people who have not had cancer (and may have higher cancer risks), while treatment trials involve a group of patients who have the same type of cancer.

In addition to speaking to your doctor, you can also learn about clinical trials on the Internet. Trials are run by research agencies such as the National Cancer Institute (NCI), as well as drug companies, hospitals and cancer centers.

Here are some places to begin your search if you have an interest in clinical trials:

INTRODUCTION TO CLNICAL TRIALS INFO:
http://www.hbo.com/cancer/cmp/clinical.html
http://www.cancer.gov/clinical_trials/understanding/
http://www.cancerguide.org/clinical_trials.html

DATABASES OF CLINICAL TRIALS:

http://www3.cancer.gov/occam/trials.html
National Center Complementary and Alternative Medicine (NCCAM)

http://ccr.nci.nih.gov/trials/ AND http://www.cancer.gov/clinical_trials/
National Cancer Institute

http://www.acor.org/
Association for Cancer Online Resources

http://www.cancernet.nci.nih.gov
For the PDQ (Physicians Data Query) Clinic Trials Database visit this NCI website or call 800-4-CANCER to search this comprehensive database of more than 1800 active cancer trials.

http://www.clinicaltrials.gov
NIH sponsored site developed to provide patients with current info about clinical research studies. A bit confusing to use. Whe possible, use the "Focused Search" feature--it will narrow the results.

http://www.hopelink.com
The HopeLink Clinical Trial Service is free and confidential. Find trials that support your cancer treatment, determine preliminary eligibility online, and submit your information to those conducting the trials.

http://www.trialscentral.org
Online version of the International Register of Clinical Trials Registers. No formal affiliation with any institution.

http://www.centerwatch.com/
Center Watch Clinical Trials Center

Use this site to find a wealth of information about clinical research, including listings of thousands of active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA. Designed to be an open resource for patients interested in participating in clinical trials and for research professionals. Not cancer-specific.

http://www.controlled-trials.com
This database was launched by CCT, a United Kingdom-based company that offers free online access to its international database of randomized, controlled trials.

http://www.veritasmedicine.com
This site works like a dating service. You provide information about your condition and the site does a search to see if you're a match for any studies they're recruiting for.

New Medicines in Development

This free listing of pharmaceutical and biotech-sponsored trials is published by Pharmaceutical Research and Manufacturers of America (PhRMA). For a copy, call them at 202-835-3450. Check the database online at http://www.phrma.org.

Exploring International Cancer Clinics

(Note from Cynthia): I assembled the following clinic reports for information purposes while working at the National Foundation for Alternative Medicine (NFAM) between 1999 and 2003. The information they contain was valid as of January 2003, but many details will no doubt have changed since then. These reports may be updated as time is available but you will need to contact the clinics directly and obtain a great deal more information if you are seriously interested in pursuing options outside the U.S. These reports are in no way an endorsement of any facilities, therapies or practitioners.

Please note that the information these reports contain may be seriously out of date and no longer valid as of late 2007. Use them as a starting point for your research only. I hope the information is educational and helpful. I would also strongly suggest obtaining a referral from one of the five organizations that specialize in alternative & complementary cancer treatment information.

Hufeland Klinik for Holistic Immunotherapy--Bad Mergentheim, Germany
Hippocrates Health Institute--West Palm Beach Florida, USA
Optimum Health Center--San Diego/Austin, USA
Paracelsus Klinik--Lustmuehle, Switzerland

CHIPSA--Tijuana, Mexico coming soon...
Burzynski Institute--Houston, Texas, USA coming soon...
Pizza Clinic--Bologna, Italy coming soon...
Sanoviv--Baja California, Mexico coming soon...
Humlegaarden--Humlebaek, Denmark coming soon...
Neue Wicker Kliniken--Bad Nauheim, Germany coming soon...
St. George Hospital--Bad Aibling, Germany coming soon...
Health Center of Lisbon--Lisbon, Portugal coming soon...

Hufeland Klinik for Holistic Immunotherapy

Note: The "best case"series retrospective review described below at its inception, was subsequently published in the peer reviewed journal, "Integrative Cancer Therapies" in June 2005. The name of the article is Cancer Outcomes at the Hufeland (Complementary/Alternative Medicine) Klinik: A Best-Case Series Review

The link for the journal is http://ict.sagepub.com.  There may be a cost to view it.  You should be aware that one of the requirements of a best case series study protocol involved obtaining the original pathology slides or radiology films to validate the cancer diagnosis. Unfortunately, many of Hufeland's cases were disqualified because these original slides or films were no longer available, had degraded in quality beyond usability, or proved extremely difficult to obtain by Columbia University. You should also know that Dr. Woeppel is now deceased, however I am told that his protocols and teachings are being carried on by his appointed successor.

(The clinic report that follows was created between 1999 and 2003 and some information will no longer be valid.)

 

ADDRESS

Hufeland Klinik for Holistic Immunotherapy

Loeffelstelzer Str. 1-3 D-97980 Bad Mergentheim
Germany
Phone: 011 49-7931-5360 (best times are Mon/Thur 10AM-12 or 3-5PM, German time, which is 6 hours ahead of Eastern Standard Time)
Ask to speak with Mrs. Gabriele Woeppel, Mrs. Johanna Bankoff or Mrs. Birgit Schrott
FAX: 011 49-7931-8185 Website: www.hufeland.com (there is an English version available - click on the icon in the corner). Also see www.drwoeppel.de (in English)
Email: WDrwoeppel@aol.com

 

PHYSICIANS/STAFF

Wolfgang Woeppel, MD, three other physicians are on staff and work under the direction of Dr. Woeppel.

 

LOCATION:

The Hufeland Clinic is in Bad Mergentheim, a picturesque medieval town, with powerful and well-known healing springs.  It is situated 40 km south of Wurzburg.  The nearest airports are Stuttgart or Frankfurt, Germany. Train service is also available from either city to Bad Mergentheim.

 

CURRENT STATUS WITH NFAM

The Hufeland Clinic "best case&" retrospective study series is currently being conducted following a review by Columbia University in New York. NFAM staff have completed site visits, interviewed patients, and a NFAM physician has made patient rounds with Dr. Woeppel.

There are 27 charts in the best case series, at this point complete records have been received on ten of these. The first 16 cases are:

  • Metastasized melanoma by primary tumor
  • Boeck sarcoidosis
  • Metastasized ovarian cancer with persisting peritoneal cancer after polychemotherapy
  • Metastatic breast cancer with lung metastases
  • Adenocarcinoma
  • Metastasized breast cancer with bone metastases; external skin cancer; lymph node metastases
  • Ewings sarcoma and lung cancer
  • Small cell bronchial cancer with brain metastases
  • Ovarian cancer with peritoneal cancer
  • Metastasized signet cell cancer with peritoneal cancer
  • Behr’s disease/Astrocytoma Grade II
  • Extensive lymphogenic and hepatic metastasized colon cancer with inoperable liver metastases
  • Extensive right frontal glioblastoma multiforme, WHO Grade IV
  • Breast cancer
  • Metastasized ovarian cancer with lung and liver metastases
  • Extensive lymphogenic metastasized coecum cancer

NOTE:The following description of potential best cases is preliminary in that the final determination about these cases has not been completed by Columbia University. Final and validated study results may be available summer/fall 2002.  Of the ten best case charts currently included in the Columbia review, the following evaluation is available as of May 2001:

As of May 2001, the Hufeland Clinic “best case series” is still a work in progress. There are 10 cases under review at Columbia University's Herbert Irving Comprehensive Cancer Center (www.ccc.columbia.edu). Columbia University has vast resources and depth of expertise to dedicate to this review; it is a National Cancer Institute designated comprehensive cancer center. The cases are all being reviewed by Columbia's pathology and radiology departments. The process is being coordinated under the direction of oncologist Victor Grann, MD. Most of the cases are currently undergoing review of the radiologic images. The pathology slides have been reviewed and validated in 6 of the 10 (the other 4 slides have not been obtained yet). NFAM's intention is to publish the best case series when the review is completed.

The first 3 patients in the series had anaplastic astrocytomas of the brain.

The first was a 5 year old boy, whose tumor extended into the optic nerves and central brain areas and so was unresectable, but after treatment at Hufeland he has been in a long term remission for the past 15 years.

The second was a 42 year old man whose tumor recurred after surgery, chemotherapy and radiation therapy, and was unresectable on the second operation. Tumor was present on CT scan in October of 1988 when he started treatment at the Hufeland clinic. Since then the tumor resolved and he remained in complete remission for 8 years before dying of a stroke (final CT scan of the head showed no brain tumor recurrence).

The third was a 52 year old woman with glioblastoma multiforme (which Columbia's pathologist read as "anaplastic astrocytoma versus glioblastoma multiforme"), recurrent after chemo, radiation and surgical extirpation, who went into remission following Dr. Woeppel's treatment. She lived in good condition until 6 years later when she died of a progressive toxic meninges dystrophy as a consequence of the radiation therapy she had received.

The fourth patient was a 15 year old boy who had a malignant glioma of the pineal gland in the brain diagnosed in 1982. The tumor was unresectable and became progressive despite radiation therapy in the 4 months after biopsy October 1982, but went into long term remission after starting Dr. Woeppel's treatment January 1983. He is alive and well today.

The fifth patient had colon cancer with multiple unresectable liver metastases diagnosed 1995, with a long term remission. He is alive and well today.

The sixth patient was a 59 year old man who had transitional cell bladder cancer diagnosed July of 1989, with a mass in the bladder obstructing the right ureter. In this case radical cystectomy and chemotherapy were refused by the patient. Long term remission occurred after treatment at Hufeland. He is alive and well today.

Two cases of ovarian cancer are under evaluation: one is a 37 year old woman with papillary serous ovarian carcinoma, who was 1st treated with high dose chemotherapy and then stem cell transplant, but then developed metastases to pleura and a mediastinal node.  She is in remission now after treatment at Hufeland. (She also was receiving another concurrent treatment [AK 125] at the University Clinic Bonn. It is not known if this can produce remission in ovarian cancer, but we are looking into it.) This may or may not turn out to be a best case.

The other ovarian cancer patient had adenopapillary ovarian carcinoma, with recurrent cancer in the abdomen following chemotherapy, and finally whole abdominal radiation therapy. She presented to the Hufeland clinic age 44 in 1987 after peritoneal carcinomatosis had been diagnosed by laparoscopy and biopsy. She went into remission following treatment at Hufeland, and reported excellent quality of life for the following 12 years. Then in January of 1999 she developed cancer in the kidneys and the pancreas (for which she was at increased risk due to the previous chemotherapy and whole abdominal radiation therapy), and died August 1999.

There are two patients in the series (the 9th and 10th) with metastatic malignant melanoma. One was a 57 year old woman, whose primary melanoma was on the arm. Twice she had to have operations to remove large tumors in the intestines due to metastatic melanoma (June 1989 and October 1990), but then in March of 1991, she developed a large inoperable pelvic mass severely narrowing the rectum and right ureter. She began treatment at the Hufeland clinic June 7, 1991, and after some time had complete relief of the pain and constipation. She went into complete remission and remained free of melanoma until she died April 1997, possibly due to recurrence to the base of the brain--there was no autopsy.

The other melanoma patient developed frequent skin recurrences in the thigh every 1-2 months following the resection of the primary from the skin of the thigh. He then developed metastases to the subcutaneous fat and inguinal nodes, which recurred locally after resection, and became unresectable, with several masses in the thigh and inguinal areas as large as 4 cm in 1992. He also went into lasting remission after treatment at Hufeland. He is alive and well today.

In addition, there is a case of a patient with mesothelioma which we will be reviewing which is probably a best case because a large tumor mass in the chest completely resolved with treatment at Hufeland, however this case is disappointing in that the patient relapsed within a year or two.

Note that in none of these cases was any conventional treatment used concurrently, either at Hufeland or elsewhere, once treatment at Hufeland began. No interferon or interleukin II was used in the melanoma patients. Since the definition of a best case excludes those treated with conventional agents which are known to affect the disease, hormonally responsive tumors, such as breast and prostate cancers which are often treated at Hufeland with hormonal therapy, cannot be studied by the best case series methodology. Dr. Woeppel showed us, for example, 3 cases of breast cancer with excellent outcomes, but these do not qualify as best cases because of his use of hormonal therapy, and in one case, low dose chemotherapy.

Because of the large number of well-documented potential best cases at this clinic, NFAM is impressed that the treatment at the Hufeland clinic may be effective treatment even in advanced cancer, and is worthy of further study. We hope to publish the findings of the best case series as soon as the validation at Columbia is completed.

Dr. Woeppel and NFAM have proposed to conduct a phase II trial of the treatment of a series (15-30 patients) with glioblastoma multiforme, the most aggressive brain malignancy with the worst prognosis, at Hufeland. The study would be run by Columbia University, who would oversee the trial design, validate the findings, and analyze the data. We are currently seeking funding for this prospective study.

 

PROSPECTIVE STUDY PROTOCOL (currently under consideration)

Two prospective trials have currently been proposed and arrangements are pending:  the first study on 15-30 patients with metastatic unresectable malignant melanoma and the second study on 15-30 patients with recurrence of glioblastoma multiforme or malignant astrocytoma of the brain.  In each case tumor response will be the primary endpoint of the study.  Data on quality of life and survival will also be collected.  Columbia University in New York will provide the epidemiological services to conduct the study and analyze the results.  These studies will not be randomized, and there will be no control group.  It is hoped that response rates will be significant enough to justify a large randomized controlled study in the future.

These tumor types were selected for study because Hufeland’s best case series includes cases of them, because Hufeland’s protocol does not include conventional agents in their treatment (unlike breast and prostate).  In each, the median survival time is short enough to expect results within two years.  The  results of this study, if positive, would have vast implications for cancer medicine and would call for further study.

 

PHILOSOPHY OF TREATMENT (from Hufeland Clinic)

The Clinic's philosophy is that a disease is not only the disorder of a single organ, but an expression of a comprehensive disorder of the whole person in unity of body and soul.  Holistic therapy is oriented to the individual causes that are believed to have led to the disease.  Only when one eliminates as much as possible these causal factors can the healing power of nature develop to its fullest. Such a therapy neither fights against nature, nor destroys a person’s immune system.

This treatment is based on a well-established concept developed by Dr. Josef Issels, a well-known German physician. It is predominantly a biological approach which rebuilds the body’s immune system. It is believed that so called “causal factors” of various kinds can weaken particular organ systems, especially the immune system.  If cancer grows in a weakened body, it finds an environment in which it is able to grow and develop easily.  Without resistance, the cancer develops into a tumor, produces metastases, and weakens the entire organism.  The cancerous tumor is thought to be only the symptom of a serious general chronic diseases.  If the tumor is removed, only the symptom is gone.  The disease is not cured and continues to exist.

 

OTHER CLINIC INFORMATION

Maximum number of patients: 53 inpatient
Dr. Woeppel started his Hospital in 1985 and has treated over 4000 inpatients, plus additional outpatients. The holistic program carried out at the Clinic includes:

  • Biological basic treatment for detoxification and regeneration by stimulating detoxifying functions of liver, kidneys and intestines with the unique healing springs of the Spa of Bad Mergentheim, by homeopathic medicines, vitamins, minerals, enzymes, multistep-oxygen-therapy and ozone therapy.
  • Special lacto-vegetarian diet to develop the healing influence of metabolism, allowing (but not encouraging) one serving of meat per week.
  • Immunotherapy to strengthen the body’s natural defense mechanisms using fever therapy, thymus extract, biological response modifiers, hyperthermia (local and whole body).
  • Psycho-Spiritual therapies to strengthen the person’s will to heal.  Art, dance, music and meditation are part of the mind/body treatment approach.
  • Careful conventional treatments when necessary, and all conventional diagnostic methods
  • Examination of teeth using a pan tomogram with suggested corrective measures, as it is believed that the most important and dangerous foci (an inflammatory process which can exert remote negative effects on other organs or systems) for cancer patients can be in the teeth and/or tonsils.

 

 

COST OF TREATMENT

The cost of treatment includes doctor's consultations, medical treatment, ECG, laboratory findings, medicines within the basic treatment, room and board, etc.totals approximately 530-DM (Deutschemark) per day in the clinic.  Without room and board, the cost is approximately 450-DM per day during treatment.  In U.S. dollars this is approximately $250-300 per day, including treatments, exams and room and board. Extra medical services (used only if necessary), such as consultations with other specialists (dentist, etc.), or scans or hospitalization are an additional charge. A deposit of 8000-DM is required upon arrival and then every 4 weeks. Only cash and travelers checks are accepted. You will need to bring all documents relating to your illness, including physician's records, x-rays, and laboratory findings.

The Clinic only accepts patients who are not too weak and are ambulatory. When a patient is severely weakened, or suffers from jaundice or needs parenteral nutrition, treatment at the Clinic may not be possible. Also, it does not accept patients suffering from leukemia, AIDS, acute infectious diseases or serious heart conditions.

Note: A biological treatment will take time to feel its effect. After the intensive phase, therapy must be continued at home in cooperation with the personal physician. Upon leaving the Clinic, a plan is given for therapy at home.  Usually at least 3-6 weeks is needed for treatment at the Clinic. Advanced cases (those with metastases and/or no further possibility of surgery, radiation or chemotherapy) may need 2 months.

 

 

INDICATIONS FOR TREATMENT/CONDITIONS TREATED

The Clinic treats malignant diseases of all kinds and stages, even if there are metastases in liver, lung or bones.  It also treats patients with rheumatoid arthritis, those who are susceptible to infections, patients with digestive disorders, inflammatory bowel disease, liver disease, arteriosclerosis, systemic lupus, sarcoidosis, and chronic fatigue syndrome.

 

TREATMENT MODALITIES AVAILABLE

Stimulation of the detoxifying functions of the liver, kidneys and intestines using the healing springs of Bad Mergentheim

  • “Bloodwash” with special ozone therapy (2X/week)
  • Infusions with peroxide
  • Optimizing metabolism by multistep-oxygen therapy (special method created by M.V.Ardenne)
  • Regeneration and activation of body’s defense system by means of thymus extract, mistletoe extract infusions, administering of antigens, trace elements, vitamins and minerals
  • Proteolytic enzymes to eliminate pathologic immune complexes
  • Active fever therapy to induce production of interferons and other modifiers of the immune system, sometimes administered simultaneously with low-dose chemotherapy.
  • Whole body hyperthermia
  • Localized hyperthermia (for liver metastases and others). Therapies with biological response modifiers and homeopathic medicines or medicines made from plants
  • Cleaning of the bowel using colon hydro-therapy
  • Regeneration of the intestinal flora with special diet and microbiological therapy
  • Neural therapy and acupuncture
  • Special electrotherapy
  • Psycho-Spiritual stabilization, using conversations, individual and group; depth relaxation (only in German at this point);  respiratory feedback; group meditation; visualization (O. Carl Simonton method); color and art therapy including painting; blindfolded sculpting in clay; group singing
  • Specific treatment of cancer with surgery, low-dose chemotherapy or hormones, if urgently needed to halt tumor growth. Chemotherapy, when used, usually employs a single agent in lower than conventional doses, or briefer duration, sometimes combined with fever therapy.  On rare occasions radiation therapy is recommended but not given onsite. Adjuvant radiation not generally recommended.  Hormonal therapy is often used.
  • Pain treatment as needed

Diagnostics include a thorough internal examination, laboratory tests, electrocardiogram, sonography, endoscopy, radiodiagnostic, X-rays, NMR, CT, various other specialists available.

Hippocrates Health Institute: A Life Change Boot Camp

Hippocrates Health Institute
1443 Palmdale Court, West Palm Beach, FL, 33411
Phone 561-471-8876 or 800-842-2125 (Reservations only)
Email: hippocrates@worldnet.att.net
Website:  www.hippocratesinst.org

Note from Cynthia: While at the National Foundation for Alternative Medicine, I wrote a report on Hippocrates based on information I was given by one of our physicians who visited the Institute for an evaluation.  I was very impressed with one of the statements he reported from Director, Brian Clement:  “30-40% of what we do here is psychological...”  As I have come to realize even more the importance of his statement, I knew that Hippocrates should be included in this e-book.

Are You Ready to Love Yourself Enough to Give Yourself Optimal Health?

When people call Hippocrates to ask what the Institute’s “cure” rates are and what therapies will be used to cure them, they receive a response that may be eye-opening:  “We do not cure you; you are responsible for your own life and your own healing.  But, we can help guide and support you in this.”  According to Clement, this approach filters out up to 90% of the people who contact Hippocrates.  The remaining 10% are a courageous lot who are ready and willing to learn to heal themselves and who will submit whole-heartedly to the Institute’s intensive regimen.  Hippocrates has many seriously ill persons arrive on their doorstep as the last stop on a downhill journey of disease progression.  Many are advanced cancer patients for whom conventional medicine has failed to provide a cure. 

Hippocrates is a non-profit organization, founded by health-pioneer Ann Wigmore and currently under the leadership of Co-Directors Brian and Anna Maria Clement. The basic protocol at Hippocrates is the “Life Change” program.  If taken in its entirety, it is 3 weeks long and includes raw vegan food, fresh green juices including wheatgrass juice, 30 hours of classes weekly, blood tests, a personal health consultation with a physician, live blood cell analysis, a personalized program by one of the health administrators, exercise facilities, yoga, tai chi, chi gong, personalized electro-magnetic/vibrational medicine therapy, one massage weekly and one colonic per visit.  All of this is included in the basic program cost.  There are also extra services such as spa treatments, hyperbaric oxygen, some I.V. treatments, or extra private psychotherapy beyond the group sessions, that are available at an extra cost.  But the basic program is complete and when fully embraced, is all one needs for beginning the healing journey.

The program cost also includes lifetime counseling by either email or fax. 

An Interview with Co-Director Brian Clement

I spoke with Brian about the Hippocrates philosophy and Life Change program.  He has been involved in the natural health movement for 35 years now, the last 18 years at Hippocrates in Florida in his current position as Co-Director.  He is a sought-after lecturer worldwide and has spent a great deal of time studying with international scientists, physicians and clinics regarding natural methods of healing. He spends up to 2 months a year traveling, lecturing and studying.  Brian and his wife, Anna Maria, are the Co-Directors of Hippocrates.  Anna Maria, also a very experienced health educator, was formerly in charge of the largest natural health facility in Sweden. 

There is a great deal of information available about the Hippocrates regimen of raw food and the rest of the physical program.  Call the Institute and request an information packet. But of greatest interest for this report was Brian’s explanation of the Institute’s focus on mental and emotional balance.  He began with a very powerful statement:  “I am 100% clear that ALL healing requires the psychological aspects to be dealt with.”  I cannot get people to do this program unless they like themselves, love themselves, unless they know who they are and where in life they’re going.  This can only be sparked through emotional work and a change in mental attitude.”  He even went so far as to offer, “If you did everything perfect physically, followed the perfect diet, and you did not address the mental and emotional aspects of an illness, you would not make it.”  You might live longer and suffer less, but you wouldn’t make it.”  These are strong words coming from someone who has worked with many thousands of very sick people over several decades.

Based on that level of understanding, the Institute has a staff of three psychotherapists, all with different backgrounds and styles.  Brian has structured it this way so that he can match the different personalities of guests with an appropriate counseling style and recommend the right therapist when he feels a particular guest needs individual help—something that happens quite often.  For example, some guests will do better with a strong, direct therapeutic style; some with a softer more pastoral style; and some may prefer to work with a therapist who has been in their shoes, has healed from a long-term chronic disease and is now committed to helping others.  Brian noted that approximately 50-70% of all guests see a therapist privately during their visit—this is strongly encouraged as integral to the healing experience.

Brian also offered an interesting metaphor for the human journey that he shares with guests.  It portrays humanity as a sailboat on the sea of life.  Making up the structure of the boat are the physical aspects of life and good health, such as food, exercise, shelter.  The water surrounding the boat is the emotions.  Depending upon our personal perception, the water can be calm or stormy; it can take the form of a pond, a lake, a river or an ocean.  And finally, the wind that fills our sails is the spiritual aspect of life. 

Hippocrates is constantly seeking to upgrade its program; as new information or technology becomes available, some program components may be modified or changed.  Brian referred to the availability of a number of electro-magnetic frequency devices for guests, and he adds to these as new technologies are discovered and proven effective for various conditions. 

He also mentioned that Hippocrates attempts to be non-elitist.  There are various levels of accommodations, including some off-site shared housing that is quite inexpensive. Even the least expensive housing option includes the complete Life Change program.  Also, approximately 70% of all guests eventually return for a refresher course.  The Institute also tries to accommodate very sick persons and if it is full with no vacancies and there is a critical situation, they will occasionally request an alumnus to reschedule his or her return visit.  The highest number of guests that can be accommodated at one time is 60 because of the personal interaction the Clements prefer to have with each guest.  They don’t feel they can increase capacity and maintain the quality of service.

Brian has been very encouraged with the arrival of a Physician/Post-Doctoral fellow in Cancer Epidemiology from the Columbia University School of Public Health to begin to scientifically document the results Hippocrates is having with cancer patients.  Guests will be followed for 12 weeks and certain immune markers and an inflammatory marker will be monitored over this time period.  The results should be available at some point in the future, but the date is unknown yet.  Check the website for this.

Other Life Change Program Details

The Life Change program is ongoing, so guests can start on any Sunday afternoon. Check out is Saturday by 11AM unless one is staying for multiple weeks. This is a 3 week program and any number of weeks can be taken, however it will take the full 3 weeks to get all the information.  The Institute is unusually accommodating and children are welcome with a caregiver.  Even pets are allowed as long as a guest has a private room and the pet is caged when unattended.  There is a $150 pet deposit.  The program is fairly intense, with activities, classes, meals, meditation, evening lectures etc. scheduled from 7AM in the morning to 8PM in the evening.  In other words, not much time is going to be spent in one’s room.

The basic philosophy of Hippocrates is based on the diet and detoxification program developed by the visionary health-pioneer, Ann Wigmore.  Over the years the Life Change program has evolved into its present form which the Institute calls “the definitive blueprint for people’s transitions into a healthier lifestyle.” 

“Here, guests from all over the world actively participate in their quest for self-improvement under the expert guidance of our knowledgeable and compassionate staff.  They enjoy our state-of-the-art therapeutic facilities, the exceptional skills of our mind/body therapists, the tantalizing daily buffet of organic, enzyme-rich foods, and lectures on life principles.”

The nutrition program is referred to as a “New Era of HOPE.”  HOPE refers to Hormones, Oxygen, Phytochemicals and Enzymes:  all important  constitutents of the vegan raw diet that create an ideal chemistry within the body for healing disease and enhancing wellness.

There is also a board-certified oncologist on staff because so many seriously ill guests seek out Hippocrates in the late stages of their disease.  Hippocrates differs from Optimum Health Institute in this, as Brian explained that they feel duty-bound to provide medical care because of large number of very sick or dying patients who seek them out.

HHI Classes:  Within the 30 hours of weekly classes are the following titles, relating directly to mental and emotional issues:  Internal Awareness, Psychoneuroimmunology, Stress Management, Visualization and Positive Thinking, The Root Cause of Disease, Exploring Body Messages, the Healing Circle and others.  Brian also explained that much of his lectures, even when they concern physical body topics, are integrated with mental and emotional perspectives.  The Clements teach many of the classes themselves.  There is a complete list of classes on the website.

Costs:  Costs vary a great deal depending on the type of accommodation that is chosen.  The complete Life Change program is always the same for everyone.  The 2004 rates range from $1200/1 week, $2200/2 weeks, $3000/3 weeks for a day student (who stays somewhere off campus on their own) all the way up to $9900 for 3 weeks in a luxurious grande suite in the Hacienda or a private cottage by the lake with sunken tub, screened patio or balcony, or Jacuzzi.  There are various housing options in between these two levels.  Another reasonable option is $3900 for 3 weeks in a shared room with shared bath in a dormitory-style house located just outside the property, but within an easy walk. 

Location:  Hippocrates is located on 30 plus acres of tropical woodland near the edge of West Palm Beach, Florida.  It is within an easy car commute to the ocean. The main building is the Hacienda, designed in a grand Mexican Villa style, and this is where most group activities take place. There are various other buildings and guest houses scattered throughout the property. 

There are four ozonated pools (without chlorine or chemicals) open 24 hours/day, including one with sea salt minerals, a whirlpool hot tub, a sauna, and access to numerous health restoration machines or devices, open to all.  Guests have unlimited access to the fitness center and self-help wheatgrass juice bar, 24 hours a day as well.

A small onsite store offers juicers, food supplements, natural cosmetics, body care, health gadgets, books, videos and some organic clothing.  These are available online as well.

The nearest airport is Palm Beach International, which is 10 minutes away, but guests can also fly into Ft. Lauderdale or Miami International.

The Oasis Spa:  Located in the Therapy Building, the Spa offers an extensive menu of services.  It is open to the surrounding communities as well, but there are reduced prices for Hippocrates guests.  Services include the usual massage, reflexology, shiatsu, hot stone massage, deep tissue massage, facials and cellulite/bodywrap treatments.  In addition, acupuncture, private yoga therapy, and vibrational energy therapy using light and sound are also available. 

Private PsychoTherapy is Strongly Encouraged:  The option of private Mind/Body Psychotherapy sessions is offered.  These sessions are based on the theories of psychoneuroimmunology and are described as “drawing on various deep feeling and body-focused techniques, as appropriate for your situation.  Unlock and safely release painful memories, catastrophic conclusions of childhood, and unexpressed emotions.  Empower yourself with new life-affirming choices.” 

There is more information about Hippocrates therapist, Andy Bernay-Roman, RN, MS, LMHC available at the following link:  www.deepfeeling.com and an interview with him is included in this report.  Andy has also written a book available at www.amazon.com called:  “Deep Feeling, Deep Healing; the Heart and Soul of Getting Well,” that includes many stories about how he works with guests at Hippocrates.  The other primary therapist at Hippocrates is a licensed mental health counselor, a licensed clinical social worker, and has masters degrees in both philosophy and theology. 

These therapists are an extraordinary onsite resource for guests to have available to begin to address the mental and emotional causes underlying much chronic disease. 

Health Educator Program:   Health Educator Certification Programs are offered three times per year. The schedule is nine weeks for new students and six weeks for alumni who have already completed the three week Life Change Program and do not wish to repeat it.  This is an intensive exploration of the Living Foods Lifestyle.  Students not only "walk the talk", but they experience detoxification and recharging on physical, emotional, mental, and spiritual levels. They explore and expand perceptions of themselves as individuals worthy of actualizing personal life goals and leave the course with the confidence, clarity and focus to create abundance and joy in their lives. Classes include Art therapy, Herbology, Neuro-Linguistic Programming, Massage Therapy, The History of Living Foods, Positive Thinking, Enzymatic Nutrition, Anatomy and Physiology. All courses provide regeneration and balance for the body, emotions, and mind.

The Tuition for the nine-week program is $5,450.00 and the six-week program is $4,350.00.  These prices do not include housing or books.  The course can be taken by those who wish to practice, or are already practicing as healthcare providers—or for anyone who wants to improve his or her personal health and help family and friends. Since its inception, the Health Educator Program has graduated students from 25 countries.

An Interview with Gayle, Age 48, Breast Cancer Patient

Gayle has been to Hippocrates five times now, as she has worked on healing her metastatic breast cancer.  At one point she had at least 18 tumors throughout her body, including her liver, lungs and neck.  By conventional standards, her prognosis was bleak at best, yet she is now nearly cancer free with only one small spot remaining on her left lung.  Gayle was extremely open and enthusiastically shared her story, in the hope that it would empower other cancer patients to make the decision to take action and do whatever it takes to heal themselves.  Her story is just one of dozens like it that have been included on the “Testimonials Board” (a bulletin board with personal stories of healing submitted by guests) at Hippocrates.  Gayle estimated that there are literally hundreds of cancer patients who have come to Hippocrates over the years and healed themselves, yet this is not a statistic that the Institute can publicize, for fear of legal reprisal.

Six years ago, Gayle had an extremely stressful life.  Her high-pressure job required over a two hour commute daily, she never saw her family, she was depressed and had begun to quit taking care of herself physically.  When her breast cancer was diagnosed, Gayle saw an oncologist and did the conventional therapies.  She then came to Hippocrates to detoxify her body, but she did very little else while there.  In other words, she focused almost entirely on the physical aspects.  She visited several more times over the ensuing years, always looking to the diet and physical therapies to keep her disease in check. 

She succeeded in keeping her cancer under control until a traumatic situation with her teenage son happened.  He began to have trouble with the law, was out of control and had to be committed to a “lockdown” type of boarding facility for rehabilitating young persons.  Gayle felt she had abandoned her son and described this as one of the most painful times of her life.  She agonized over sending him away and then struggled with hearing his pleas to come home.  Soon after this, she found that her cancer had returned with a vengeance, with many more areas of her body now showing tumor growth--at least 18 more tumors were counted.  Her oncologist recommended chemotherapy once a week for the next 6 months. 

At this point, Gayle returned to Hippocrates, determined to embrace the complete Life Change program 100% and to do whatever emotional work was required!  She now began to do intensive psychological work with psychotherapist Andy Roman, seeing him two or three times a week for the six weeks she was there.  She credits this emotional work as being extremely difficult, but probably the critical component of her success this time.  

Gayle began to explore how the loss of her mother at age six triggered major feelings of abandonment in her psyche.  She embraced her feelings, allowed their expression and began to heal in a dramatic fashion.  She remarked how amazed she was at the level of fear that was attached to keeping her emotions repressed.  She recalled one especially powerful therapy session of emotional release when she said out loud to herself as she left the session, exhausted but at peace, “I can breathe!”  It just came out. 

Gayle also shared that she began to regularly attend the “Healing Circles” class at Hippocrates, during which Andy Roman worked experientially with several guests while the others observed.  She remarked how lucky she was to have a supportive husband, because the stories she often heard from others portrayed a very different situation.  Some guests were forced to endure constant criticism and judgment from family members who continued to try to force them to make conventional choices and abandon their commitment to natural healing methods.

When she returned home and visited one of her oncologists, Gayle remarked, “His jaw just dropped open when he saw me.  Mind you, I looked great, I was tan, I was exercising every day, I looked the picture of health.  He really didn’t expect to ever see me again.”  Her tests revealed that 97% of her cancer had now disappeared.  “What did you do,” he asked, “Did you go to Sloan-Kettering?”  She smiled and told him exactly what she had done, but he took no notes and she knew that none of this would ever be shared with another patient.  She added sadly, “And I know several of his patients who were just like me….”

Gayle's original oncologist (not the one described in the preceding paragraph), a female physician who had decided to leave oncology for general practice, actually accompanied Gayle on her next visit to Hippocrates and participated in the program—just to find out what was causing these amazing results!

Gayle wanted to make a final point for other cancer patients. She had made the decision that she needed to completely separate herself from her normal life last winter, to devote all her mental, emotional and physical energy to healing.  During that time she made arrangements to temporarily live in California, she used email only, she took no phone calls, she put all her many social and job commitments on hold, she exercised and ate raw every day—and she ultimately discovered that almost all the tumors in her body had dissolved away in the process.  Gayle said she wanted to encourage other patients to have the courage to change their lives if they need to—no matter how difficult this may be.  Take a second mortgage or borrow if you must, change locations, release commitments, distance yourself from unsupportive family and friends and find the courage to work on the mental and emotional aspects of your disease.  In other words, become empowered enough to do whatever it takes to create the energy and optimal situation for healing your life and your illness.

Optimum Health Institute (OHI)

Optimum Health Institute - San Diego 6970 Central Avenue, Lemon Grove, CA 91945 Phone:  800-993-4325 www.optimumhealth.org

Optimum Health Institute - Austin 265 Cedar Lane, Cedar Creek, TX 87612 Phone: 512-303-4817 www.optimumhealth.org

From Cynthia: I first learned about OHI from an exceptional cancer survivor who was part of the Education Advisory Committee at the National Foundation for Alternative Medicine.  OHI was the first stop on her healing journey, where she stabilized and began to heal her late stage IV pancreatic cancer.  She has continued to return at least once a year and to enthusiastically recommend it to others who ask her how she created her miracle of healing.  Based on her recommendation, I visited OHI San Diego myself several years ago. I was impressed with the quality of the classes, the enthusiasm and caring of the staff, and the incredible value OHI represents for the very ill individuals who definitely require a multi-week stay.  At OHI, many who would not be normally be able to afford a residential healing program have the opportunity to participate.  I came away wishing there were more OHI’s around the country so many more people could use them on a regular basis.

A Serious Health-Building Lifestyle Program Embracing Body, Mind & Spirit

The Optimum Health Institute (OHI) has a very simple philosophy that it communicates clearly throughout all components of the program:  The body is a self-cleansing, self-healing organism when it is given the proper tools to work with.  These tools include a raw organic diet, freshly juiced wheatgrass, maximum fluid intake, exercise to encourage lymphatic drainage and energy movement, colon cleansing and the detoxification of mind and emotions.  OHI promotes whole person healing and their program emphasizes self-discipline and the value of taking responsibility for oneself. 

The Institute strongly emphasizes the need for mental and emotional detoxification as key components for optimal healing and wellness.  This is not suggested to be a “quick fix” solution to chronic or degenerative illness, and a 3-6 month commitment to this type of whole-person protocol is minimal in order for deep changes in the body to manifest and stabilize.

There are no medical personnel available at OHI, because this program does not provide medical treatments, health evaluations or health recommendations.  All persons, regardless of health status, follow the same standard diet (with slight modifications) and detoxification program and are responsible for their own care while participating.  Since this is not a treatment protocol but a natural health-building lifestyle program, many different diseases and stages of wellness are present in those participating in the program.   No discussion of type of illness is ever mentioned in the registration process; in fact it is requested during orientation that one’s reason for being at the Institute not be discussed with others at all.  OHI teaches that there are no diseases, simply different “health opportunities.” 

"Healing circles," generally only taking 3-5 minutes or so, are held before every meal, creating a real sense of community among guests. The feeling of connection from being in a supportive and caring community is no doubt also an important part of the healing process. 

The Optimum Health Institute is a non-profit organization and a non-denominational mission of the Free Sacred Trinity Church, based on the ancient Essene tradition.  Don’t let the term “church” mislead you; this is not a religious program in the least and even the spiritual aspects of the program are made more accessible by the substitution of certain phrases and words, such as the term “alpha technique’ rather than meditation.  OHI sees its mission as helping people reconnect with their “Source,” no matter how they view that Source.

An Interview with One of OHI’s Founders: Pam Nees

Pam has been at Optimum Health since it’s inception in 1976 and she is now the last surviving founder.  In its 30 years of operation, she notes that well over 75,000 individuals have visited the Institute and been transformed in some way.  She emphasized that visitors are definitely “guests” and not “patients” and are treated as valued guests. 

Pam feels strongly that self-responsibility is integral to the success people achieve: “We are responsible and accountable to every cell in our bodies for the choices we make.”  She describes many guests as arriving “fragmented” and out of balance. “What OHI tries to do,” she explained, “is to try to pull the pieces back together again, to integrate each of them back into a truly wholistic being. “  Over the years, she has witnessed many miraculous results in healing the hearts, minds and bodies of visitors.  Of course the physical healing is always the most obvious and dramatic, but the mental, emotional and spiritual healing happens just as often.  Pam remarked that the OHI protocol is so “low-tech” that people can’t believe the results can be as profound as they are.  She went on, “It’s so simple, people don’t believe it can really work.”  But it does, sometimes in ways that are nothing short of magical.

Interestingly, in agreement with other discussions within these chapters, Pam noted that she has observed the same pattern of a very stressful or traumatic event happening 18-24 months before cancer manifests in an individual.  She often asks guests what was happening in their lives during this time period to get them to think about this.  She has also observed the extremely high levels of stress many people are dealing with in today’s world and how OHI attempts to teach them how to lessen its impact or release much of it.

Pam explained that since there are no healthcare professionals on staff, guests are required to be in contact with their own doctors or other healthcare providers while at OHI.  This is because of the rapid body changes that occur during serious detoxification.  She noted that the need for prescription medication is generally diminished very quickly and many times dosages need to be reduced, sometimes significantly so. 

Key to Lifestyle Changes and Healing:  OHI’s 40 Classes Each Week

The Optimum Health Institute recognizes the importance of educating guests in how to change their lives, lessen stress, embrace a healthier diet, detox their bodies, balance their emotions and attain a more positive mental attitude.  For this, they offer 40 classes every week.  Of the 40, 14 are directly concerned with mental, emotional and spiritual healing; the rest are related to diet, instruction in food preparation, physical detoxification and exercise.  Titles for the 14 include “Your Life is a Gift, Mind/Body Connection, Advanced Alpha Technique, Emotional Detoxification, Mental Detoxification, ‘You’ Validation, Self Esteem” and others.   A group toning class is especially powerful. There is a formal “Release Ceremony” held each week, during which all those who wish to let go of anything in their lives (including an illness, relationship, job or anything else) write the message on a paper and then during the ceremony all the papers are burned together—quite a powerful symbolic ritual. 

The Diet and Detoxification Program

These components of OHI’s program consist of raw food, exercise and daily enemas.  There are daily classes with detailed instruction in bodily processes such as elimination and digestion.  The second and third weeks of the three week program focus on teaching participants how to prepare the raw foods and create meals upon returning home.  There is detailed instruction given about how to do the daily enemas, which include a wheatgrass juice implant.

Daily menus generally include watermelon for breakfast and raw vegetables, sprouted seeds or grains and fermented foods for lunch and dinner.  The diet created by well-known health pioneer Ann Wigmore is used, including her fermented drink called Rejuvelac.  The food program is kept as simple as possible and there are no sauces, dressings or salt available, although presentation is quite attractive and food amounts are more than ample.  There is a three-day juice “fast” (optional) included in the middle of the first week program in order to give the detoxification process an extra nudge.

Raw vegetarian food creates a highly alkaline diet. Raw is used because of the belief that the natural enzymes present within digest the foods consumed quickly and easily, without additional strain on the body, thereby allowing most of the body’s available energy to be directed toward detoxification and healing.  Also, much current nutrition-related literature refers to the very positive effect an alkalinizing diet has on many illnesses. There is also an emphasis on proper food combining, which is believed to enhance the digestive and detoxification processes. 

There are workbooks, study guides, cookbooks and videos available at the store for those who wish to have this kind of support for either doing the program at home or reviewing and reinforcing what was learned while visiting.  A simple, inexpensive but well thought-out enema kit is available for purchase in the store.

Other OHI Details

The entire program consists of 3 weeks, although any number of weeks can be taken.  In order to experience all the classes, including food preparation, the full 3 week program is required.  Check-in is Sunday afternoon and check out is by 10AM on the following Saturday, unless multiple weeks are booked.  There are optional colonics, massages and chiropractic visits available onsite at extra cost and these are paid for separately.  They are not required to be successful in the program and there are no other health-related services available on the property. 

The maximum number of persons who can be served in the residential program is 150; there is also a commuter program available at reduced cost.  First timers are strongly advised to be onsite for at least the first week of the program. 

Guests care for their own rooms, as there is no maid service between check in and check out; this even includes collecting toilet paper from the community closet as needed.  This is not a spa-like atmosphere, but a serious, self-directed health program. Participants must also juice their own fresh wheatgrass, although all other foods and juices are provided.  Since there is no maid or room service available at the Institute, a person attending must be able to care for him or herself, or have a support person available.  There are rooms available without stairs for easy wheelchair access.  Seriously ill persons may wish to consider the full 3 week or even a 4 week program.  Since the Institute has deliberately tried to keep costs as low as possible, this option is a possibility for many persons with a chronic health challenge.

There is a voluntary talent show on Friday nights that is very popular with both guests and staff.

Costs: The very reasonable weekly costs for the entire program, including food, room and board and all classes ranges from a shared (double) room with twin beds and shared bath at $585 to a two bedroom, two bath townhouse at $950.  A suite is available for $1250 and the standard private room with bath is $765 single occupancy.

The “Missionary” Program:  Also of note, the Institute has a program for those who cannot afford even these low rates.  In exchange for 18 hours of work per week, persons who are accepted (called “missionaries”) can take part in the program at no cost. There is an application process that must be followed and the minimum length of time commitment requested for this type of arrangement is 3 months.   There will be a minimal cost for housing.

Location: There are two Optimum Health Institutes; one near San Diego (Lemon Grove) and the other in Austin, Texas.  They offer the same program; Austin is slightly more upscale and a bit more expensive.  Lemon Grove and OHI are located about 15 minutes from the San Diego Airport. 

The Institute appears to be almost a tropical oasis created in the midst of a network of major highways and shopping centers and the highway noise can be distracting at times.  Some of this can be bypassed by requesting a “preferred deluxe” room on the Central Avenue side of the facility.  Grounds are immaculate and the rooms are quite nice, although not upscale by any means.  The Institute has purchased a townhouse development next door and also uses many of the apartments in an adjoining community, in order to be able to offer its programs to more persons.

There is a small meditation room/chapel onsite, as well as a store where some natural personal items are sold, along with books, videos and equipment to support a raw food diet such as seeds for sprouting, juicers, dehydrators, etc.

A path around the perimeter of the gated property is ¼ mile long for those who want to walk or jog.  There is a large jacuzzi onsite, as well as an unheated swimming pool.  No other exercise facilities are available.  Comfortable lounge chairs abound throughout the grounds, making for easy communication and connecting between participants.  Since the weather is generally beautiful, many people choose to eat meals outside.

More Notes:  Many guests present during my visit had been to the Institute multiple times; there is a high return visit rate and very positive regard for the program. I personally met at least a dozen people who come once or twice every year to detoxify themselves and renew their dedication to wellness, and there were probably more.  One elderly gentleman present had made over 70 visits during the last 26 years. 

There were a variety of anecdotal stories of successful healing or improved health situations given by program participants, including cancer patients, during the regular Friday morning “Testimonials” gathering. Some of these were quite profound, including a gentleman whose massive neck tumors had softened and shrunk significantly and who was able to speak and swallow after 3 weeks; he had decided to stay for another 2 weeks of the program. 

I was also quite surprised to learn that OHI has never paid for advertising during its 30 years of providing these programs.  All those who come have discovered the Institute through word of mouth and the Institute is filled to capacity many weeks.  Although the facilities are simple, many celebrities have completed the program.

Paracelsus Klinik

Note: Clinic Report from 2002--You will need to contact the clinic for updated info.

ADDRESS:

Center for Holistic Medicine and Dentistry
CH-9062 Lustmuehle/St. Gallen
Switzerland

Phone: 01141 713357171 (Medical Clinic)
Phone: 01141 713357177 (Dental Clinic)
FAX: 01141 713357100

Email: director@paracelsus.ch
Website: www.paracelsus.ch (click on English at the top)

Note: There's a 2 year seminar series training offered by Dr. Rau and the Paracelsus Biological Medicine Network for healthcare professionals in the holistic medical field.  Find out more.

PHYSICIANS/STAFF

Thomas Rau, MD, Medical Director,  4 physicians, 5 dentists, chiropractor, staff of 27 therapists, technicians, administrative personnel

LOCATION

A very beautiful setting in the Alps with light-filled buildings.  Almost every room is filled with large windows with views of the mountains. The clinic was founded in 1958, and has been under current direction of Dr. Rau for eight years.

STATUS WITH NFAM (as of 2002)

A review by NFAM research staff is currently pending. Some of the cases included the complete resolution of a cutaneous T. cell lymphoma (micosis fungoides) using neural therapy, including a series of H2O2 injections into the lesions.  Charts are kept with physicians notes, some outside path reports and scan reports were present in some charts.  Reports on thermography, labs and darkfield are included.  Most patients are from Switzerland and Germany, however 3 patients in the review were from the US. 

Most of the cases presented were too recent to assess for Extension QL (quality of life extension). In the presentation of cases, there appeared to be strong clinical improvement and quality of life improvement in the patients.

PHILOSOPHY OF TREATMENT (from Paracelsus Clinic)

"Healing a human being by strengthening the healthy parts.  Trying to recover,  people concentrate on the sickness and the future.  The concentration should be on life, the now, the joy, the game and the love."

NOTE: The facility was originally built by an anthroposophical physician, and those standards are still adhered to. The beliefs of Anthrosophical Medicine come from a spiritual-philosophical movement based on  the teachings of Rudolf Steiner. Much of its focus is on the psycho-spiritual aspects of healing, through encouraging artistic activities such as movement therapy (called eurhythmy), painting, light and color therapy, music, exercise, oils baths and massage.  A primary therapy used in Anthroposophial Medicine is a fermented preparation of the European mistletoe plant, which has long been used in European folk medicine.  It is available in Europe under the trade name of “Iscador.” Misteltoe is known to be poisonous,and its use is monitored in controlled dosages.

Dental work and all the concepts associated with neural therapy play a big role in treatments used.  Sanum remedies, homeopathics of many kinds are used in their neural therapies.  “Biological Medicine” is the term used to describe this philosophy of treatment, which recognizes a person as one whole, functional biological unit. According to this philosophy, if one part of the body is sick, this will affect and make other parts sick as well. Symptoms are always seen as an expression of a deeper general disturbance in the activating regulation ability of the body and as such they should not be suppressed or stopped.  The first step is to improve the metabolism, many times finding and unblocking any substances or situations that prevent the body from healing itself. Examples would be root canals, infections in the tonsils or sinuses and heavy metal toxicity, etc.  The second step would be detoxification in combination with modern methods of immune stimulation and activating therapies. Symptoms then lose their necessity and disappear.

Diet plays a large part with three basic nutritional programs prescribed:  allergy diet, macrobiotic diet, vegan diet. Because of the anthroposophical orientation, there are some rather unusual therapies. Thermograms are used extensively for diagnosis.  Mistletoe therapy is used in many forms. Treatment always contains various types of therapies which are said to complement one another and widely support the body’s ability of self-regulation.  They are believed to affect the root cause of chronic disease.

Holistic dentistry encompasses the belief that teeth through the root system have energy connections to different organs all over the body. These energy connections are called “meridians” and they are said to have a far-reaching influence on the entire body. According to this theory, when teeth are altered in many ways (root canals, false tooth implantations, amalgam fillings, impacted wisdom teeth, metals in the mouth, bone infections in the jaw) they may act as a blockage to the natural regulatory capacity of the body, making healing virtually impossible.  These are called “disturbance foci.”  Holistic dentistry seeks to remove and correct any such disturbances that obstruct the natural healing capacity of the body.  Many times, removal of dental foci alone is said to lead to the improvement of chronic disease.

OTHER CLINIC INFORMATION

There are beds for inpatients at a nearby facility.  All treatment administered at Paracelsus is outpatient only. Transportation is provided by the Clinic.  The menus served at the two restaurants that work with the Klinik are basically vegan.  Most patients are requested to use a strict vegan diet, with no animal proteins, but including soy.

The duration of therapies varies between 2 and 4 weeks as a rule.  After the intensive treatment program, the patient is given an individual post-therapy plan for the physician at home.  If necessary, individual prescribed remedies and infusions are also provided for continued outpatient care.

COST OF TREATMENT

Living accommodations are arranged separately and must be paid separately. Costs per person at the local hotel are approximately SFr. 45 and SFr. 90 per day, including the diet program according to Dr. Rau. Costs at the nearby hospital (inpatient), including full board and medical supervision are approx. SFr. 1’800 for a single room and SFr. 1’500 for a double. All rooms have private bath, balcony, TV and telephone.

The cost of medical treatment for daily intensive care (consultation, therapies, infusions, medications) depends on each individual.  Depending on intensity, cost usually varies between SFr. 250 and SFr. 400 per day, five days a week. Prices are according to agreement with the Swiss Health Insurance System.  All services are listed separately on the bill so it can be used for reimbursement by insurance companies if services are covered. There is no agreement with foreign carriers, but the Clinic is recognized and accredited as a hospital and outpatient treatment center by the Swiss Health Insurance System.

Important:  A deposit of SFr. 5’000 is required for the medical treatment on the day of arrival.  It will be applied to the balance of the account.  If you are having dental treatment, the dentist will give an accurate quotation at the beginning of treatment.  The quoted amount must be paid in advance. Contact the Paracelsus Clinic to confirm these rates.

Preferred payment in Switzerland is cash, either in Swiss francs or in US dollars. For security reasons, you may buy Travelers checks in your own currency or in Swiss francs before you leave home. The Clinic accepts Visa credit cards. 

INDICATIONS FOR TREATMENT/CONDITIONS TREATED

Biological medicine is multifaceted, comprehensive, and appropriate for all conditions and diseases.  Dr. Rau’s team sees 150 patients of all ages daily, and they come for holistic treatment of all types of problems, from terminal cancer, to hyperactivity in children, to Alzheimer’s in the elderly.

Some examples of the specific therapy programs include:

  • Prostata hyperplasia:  1-2 weeks. Depending on additional disease present
  • Osteoporosis:  3 weeks
  • Chronic fatigue syndrome:  3-4 weeks
  • Fibromyalgia/Fibrositis/Connective tissue disease:  3 weeks, very intensive program
  • Breast cancer, early and late stage: 2-4 weeks
  • Asthma and susceptibility to infections:  2 weeks with intensive post treatment program

TREATMENT MODALITIES AVAILABLE

Holistic dentistry, biological medicine, with a strong focus on interference/foci elimination involving biological dentistry and neural therapy. There is a heavy emphasis on psychological aspects of treatment, although there is no psychologist on staff; art therapy, hiking in the mountains/being outdoors in nature is considered therapy.

Diagnostic Methods:

  • Darkfield microscopy: examination of fungal and endobiotic afflictions according to Prof. Enderlein
  • Electro acupuncture (Voll)
  • Thermo regulation diagnosis
  • X-ray diagnosis, including ECG, ergometry, pulmonary functions, hermatology lab
  • Mineral content analyses from hair, blood and urine
  • Interference and focus examinations
  • Toxification examination
  • Allergy examination
  • Measurement of environmental influences in home and workplace

Treatment Modalities:

  • Isopathy, terrain therapy according to Prof. Enderlein
  • Anthroposophical medicine
  • Homeopathic therapies
  • Neural therapy
  • Colon hydrotherapy
  • Orthomolecular therapy
  • Chelation therapy
  • Ozone therapies
  • Chinese medicine, acupuncture
  • Preparation of individual naturopathic remedies and homeopathics
  • Bioresonance therapy, allergy clarification and therapies
  • Fasting cures, diet consultations, healing nourishment science
  • Holistic biological tumor treatment, including local and systemic hyperthermia
  • Elimination of toxic afflictions
  • Acid-base therapies
  • Kinesiology

Dentistry:

  • Holistic dentistry and amlagam diversions
  • Dental lab for bio-compatible tooth replacement
  • Holistic jaw-orthopedistic correction of mispositioned teeth (biomator method)
  • Jaw surgery
  • Orthopantomograph
  • Electro acupuncture for material verification and focus examination

Physiotherapy:

  • Energy flow massage
  • Regulative and diversive physiotherapies: cupping, intestinal lavage, feet reflex zone massage, etc.
  • Manual therapies (chirotherapy)
  • Laser therapy

Links for Complementary/Alternative Cancer Treatment Information

Goverment Websites:

The National Center for Complementary and Alternative Medicine at the National Institutes of Health http://www.nccam.nih.gov

For an excellent search engine on this site for finding scientific and medical articles about specific treatments, go to CAM on PubMed at http://www.nlm.nih.gov/nccam/camonpubmed.html

Question: My insurer has asked me for evidence, from scientific and medical literature, about the use of a CAM treatment. Can NCCAM provide this information?

The NCCAM Clearinghouse can help you find information from the scientific and medical literature on CAM. They use databases of peer-reviewed scientific and medical journals, such as CAM on PubMed. If you do not have access to the Internet, the Clearinghouse can send information to you.

National Cancer Institute
http://www.cancer.gov

The website has information about clinical trials and other related sites. CancerNet is a service of the National Cancer Institute and it contains extensive resources for exploring more traditional treatment options, some alternative choices and self-education. For the PDQ (Physicians Data Query) Clinic Trials Database visit the NCI website: http://www.cancernet.nci.nih.gov or call 800-4-CANCER to search this comprehensive database of more than 1800 active cancer trials.

http://www.nlm.nih.gov/medlineplus/cancergeneral.html

NIH website for health information/general cancer specific with links for the latest news in cancer treatments, both traditional and CAM.

 

Other Websites

http://www.cancerconfidential.com/data1.htm

Cancer Confidential, an eBook from Keith Scott-Mumby MD with great info about many alternative treatments. There is a charge of $37 to download it, but we think it's worth it. Updated regularly to cover new research and info. Try out one of his free ebooks at http://www.cancerconfidential.com/WhatIWantForYou.pdf. Don't miss Chapter 4: "Get Yourself Cleaned Up Emotionally"....it's another endorsement of Dr. Hamer's theories about the emotional basis for many cancers.

http://www.alternative-doctor.com/cancer/index.htm

An excellent list of resources with explanations and details about many alternative treatments, including many used in international cancer clinics. Written by Dr. Keith Scott-Mumby

http://www.healingcancernaturally.com

A wealth of good information about mind-body healing, alternative methods, inspiration, downloads, and lots of links for more exploration. Includes articles about Dr. Hamer’s work.

http://www.heall.com/body/resource/organizations/cancer.html

An eclectic list of organizations and physicians who treat cancer worldwide. Both traditional and alternative medicine contact information is provided.

http://www.cancure.org

A non-profit organization providing information and resources for fighting cancer using alternative medicine. Includes patient stories and a directory of treatment providers.

http://www.gnc.com/health_notes

GNC’s (the vitamin store) website includes this excellent database with descriptions of many health conditions, including which supplements have demonstrated benefits, with clinical efficacy ratings. Also includes listings for most vitamins, herbs, homeopathics and other supplements with specific benefits, safety checker (drug/supplement interactions) and more. Great website for beginners to learn the basics about supplementation.

http://www.healthy.net

HealthWorld Online website, includes extensive wellness, nutrition, alternative medicine and treatment information with healthcare provider referral networks available. Also includes a link for MedLine searches at http://www.healthy.net/library/search/medline.asp

http://www.cancerlinksusa.com

Links given to many cancer-related sites, including support groups, large cancer hospitals, and recent articles on cancer. There is an abbreviated glossary for many medical oncology terms at http://www.cancerlinksusa.com/tools/glossary.html

http://www.cancer411.com

A great deal of information and resources about treating cancer, both conventionally and alternatively, with a good selection of additional sites to visit. Information about world-wide clinical trials listed.

http://www.cancermonthly.com

Extensive cancer resources and a centralized database of cancer treatment results, compiled by medical experts. There is a subscription cost for the monthly service.

http://www.cancer.org

Website for the American Cancer Society. There is information about alternative and complementary choices under "Treatment Options."

http://www.mcp.edu/herbal/default.htm

Website for the Longwood Herbal Task Force with scientific and research-based information about medicinal herbs and dietary supplements, including monographs, clinician information summaries and patient fact sheets.

http://www.herbmed.org

An interactive, electronic herbal database that offers hyperlinked access to the scientific data underlying the use of herbs for health—an evidence-based resource for professionals, researchers and the public.

http://www.ecap-online.org

Dr. Bernie Siegel's website for Exceptional Cancer Patients, the organization he founded in 1978 that promotes the concept of integrative healing in mind, body and spirit. Offers professional training programs, as well as Insights for Living Beyond Cancer program and retreats for patients. Call 814-337-8192 or email: info@mind-body.org.

http://www.5aday.com

Great website with free newsletter and a wealth of information about fruits and vegetables, includes lots of recipes.

http://www.consumerlab.com

An independent lab that provides test results and information to help consumers and healthcare professionals evaluate health, wellness, and nutrition products. It publishes results of its tests online and includes listings of brands that have passed testing. More than 1 in 5 products fail testing.

http://www.annieappleseedproject.org

Extensive resources included on this site, created by a breast cancer survivor, includes database of international clinics, environmental issues, multicultural issues, women’s cancer issues and lots more.

http://www.sharecancersupport.org

SHARE is a non-profit organization that provides support services for women, men and children who have been affected by breast or ovarian cancer. SHARE's services include information hotlines in English and Spanish, survivor-led support groups, public education, advocacy and wellness programs. SHARE's model of survivorship also promotes public awareness and early detection of these diseases. Phone is 866-891-2392 (toll-free).

http://www.gerson.org

Website for the Gerson Institute, with resources for exploring the Max Gerson juicing therapy. Includes case histories and survivor stories along with places o obtain the therapy or education about it.

http://www.noah-health.org/english/illness/cancer/cancer.html

Website for NOAH (New York Online Access to Health). This is the Ask Noah About Cancer page. It includes lots of links for additional information about causes of cancer, food/genetic factors etc., prevention, risk factors, cancer diagnosis and screening, finding oncologists, statistics, types of cancer, staging and grading cancers, clinical trials, the FDA and cancer, living with cancer, side effects and complications, life after cancer, treatments (including some complementary/alternative therapies), information resources, and more.

http://www.cancercenter.com/patientservices/content/DecisionGuide.pdf

The Cancer Treatment Centers of America offers this downloadable Decision Guide for finding the best doctor, hospital or clinic treatment center for you. Note that this is a more conventional or complementary orientation to treatment options, however it highlights the key principles to manage the cancer decision-making process and offers some very helpful tools, worksheets and methods for making comparisons between several options.

http://www.webmd.com/diseases_and_conditions/cancer.htm

Website for WebMD's main "Cancer Health Center" with links to much additional cancer-specific info. Free newsletter.

http://www.medicinenet.com/cancer/focus.htm

Medicine Net's cancer page, includes resources, practical info on cancer,, cancer drugs, news and more. MedicineNet.com is an online, healthcare media publishing company. It provides easy-to-read, in-depth, medical information for consumers via its user-friendly, interactive web site. Content is produced by practicing doctors with content about a variety of medical and health subjects. Individuals can research ailments, treatments, and medications.

http://www.napralert.org

NAPRALERT, the world's largest source of information on herbs and medicinal plant research was just made available to the public. The University of Illinois at Chicago has opened access to NAPRALERT, its database of more than 200,000 published studies. The database contains information on more than 20,000 species of plants, animals and marine organisms. Areas of research include botanically derived natural products' effects on inflammation, cancer, pain, metabolism and much more. The team at UIC said individuals who have difficulty navigating the site can receive support by e-mailing ushab@uic.edu.

NAPRALERT, an acronym for Natural Products Alert, was begun in 1975 by Norman F. Farnsworth, research professor of pharmacognosy and senior university scholar at UIC, and his colleagues, who systematically reviewed every scientific and journal relevant to natural products in the UIC Health Science Library. They continued to review online journals to update the database through 2003. (Only about 15 percent of relevant studies from '04 and '05 are currently included, due to budget restraints.) Past clients of NAPRALERT have include universities, the Food and Drug Administration and the World Health Organization.

http://www.naturalhealers.com/featured.shtml

This website includes a comprehensive list of natural healing schools searchable by state, modality, distance learning or continuing education. Many maintain a database of graduates, if you're looking for a particular type of practitioner.

Misc. Cancer Resources

Prepare For Surgery, Heal Faster Created by psychotherapist Peggy Huddleston, this is a five-step program to release fear and mentally prepare for surgery in order to create the biochemistry of healing and speed recovery. Research on this program was conducted at a Harvard Medical School teaching hospital in Boston. Can also be used to lessen the side effects of chemo, radiation or other medical procedures. These workshops are now offered in hospitals, HMO’s and for individuals by nurses and therapists trained and certified by Peggy. Book and tape available on the website for $24.90 at www.healfaster.com. For questions call 800-726-4173.

www.CaringBridge.org 
Create your own website about your cancer journey so friends and family can follow you.  Free, personalized websites that support and connect loved ones during critical illness, treatment and recovery.

Writing About Cancer is a therapeutic writing course for cancer patients and survivors. The work is based on the research by James D. Pennebaker, PhD, who found that writing deep thoughts and feelings about stressful events can help people heal, both emotionally and physically. Look for the link for "The Healing Way: A Journal for Cancer Survivors" by Margie Davis--it contains over 60 well-researched writing exercises to help cancer patients and survivors write therapeutically about their cancer experience. Whether you are newly diagnosed, currently in treatment, or have been in remission for years, writing about the different aspects of your cancer can be very therapeutic and healing. For details about all of this, go to www.writingtoheal.com.

Guided Imagery Programs Although called “visualization” and “mental imagery,” these terms can be misleading. Guided Imagery involves far more than just the visual sense—and this is a good thing, given the fact that only about 55% of the population is strongly wired visually. Instead, imagery involves all of the senses and almost anyone can do this. Neither is it strictly a “mental” activity—it involves the whole body, the emotions, and all the senses, and it is precisely this body-based focus that makes for its powerful impact on health.

  • Health Journeys A private multimedia publishing company offering outstanding guided imagery CD’s, tapes, and videos by Belleruth Naparstak, a gifted psychotherapist. Cancer-related topics include “The Cancer Pack,” “Chemotherapy, Anger & Forgiveness,” “Healing Trauma,” “Fight Cancer,” and others. The music has been specially written in most “journeys” to synchronize perfectly with Belleruth’s soothing voice. Additional products by other leaders in the mind-body field such as O. Carl Simonton, Bernie Siegel, and Andrew Weil are also available here. Great quality. There are free audio samples available online. Website is www.healthjourneys.com or call 330-633-3831 or 800-800-8661.
  • Cancer Involvement Program An integrative and holistic approach to cancer treatment, this program can be integrated into a conventional or alternative treatment plan. Guided imagery sessions include visualizations for chemotherapy and radiation and assist with depression, will to live, reducing tension and stress, facing fear and enhancing the immune response. Imagery is said to bridge the gap between body and mind and assist in the body’s innate ability to heal and achieve wellness. Phone 877-795-5824. www.onehealthpublishing.com

American Environmental Health Foundation – for environmentally safe and non-toxic products A non-profit organization that personally reviews and approves products offered in their catalog. Includes air purifiers, water filters, household cleaners, bath and bedding items, books and videos, lawn and garden supplies, paints and home improvement items, nutritional supplements, personal care items, saunas and various pollution detection kits. Call 800-428-2343 or fax catalog request to 214-361-2534. Catalog is also online at www.aehf.com. Email: aehf@aehf.com.

Cancer Wise: Dr Keith Scott-Mumby's audio CD series describing many cancer alternative treatments, including what's cutting edge today in alternatives. Webelieve this is unbiased and helpful information, but we haven't reviewed it yet. Find it at www.cancer-wise.com. His regular webiste is at www.alternative-doctor.com.

Emotional Genius—How Your Emotions Can Save Your Life by Karla McLaren Six 90-minute cassette tapes from www.soundstrue.com Without an understanding of our emotional nature, most people never succeed in their quest for health, happiness, and freedom. Karla teaches how to address disease by balancing the mind, body, spiritual, and emotional aspects of our being. The tapes contain exercises for addressing each of the emotions, including sadness, anger, and hate. Karla is an empath, teacher, and author who specializes in emotional trauma work. She states that roughly 50% of us are trauma survivors and teaches that all of our emotions, including the most difficult ones, are carriers of energy, information, and wisdom that have the power to protect and heal us. Although it does not replace the need for professional help, these tapes are a great self-help resource.

A Free Resource for Psycho-Spiritual Healing: Emotional Freedom Technique http://www.emofree.com Website for information about this easy to use universal healing technique that anyone can employ. The site offers complete instruction without cost so that anyone can begin using the technique immediately for healing trauma and abuse, old emotional wounds, fears and phobias, anxiety and stress, depression, addictions, compulsions, pain and some physical conditions. Can also be used for help in dealing with treatment side-effects. This is an energy medicine technique based on acupuncture meridians and many holistically-oriented psychologists now offer it or a similar technique as a treatment adjunct. Phone 707-785 2848

For a great video about this amazing (and free!) emotional heaing technique, go here.

In simplest terms, EFT is an emotional form of acupuncture except that no needles are used. Instead, one taps with the fingertips to stimulate certain meridian points while one is "tuned in" to the problem or issue. We are still learning why EFT (and its many cousins such as “Thought Field Therapy”) works so well. The existing theory is that "the cause of negative emotions is a disruption in the body's energy system." There is ample evidence that it works--in many cases.

The subtle energies that circulate throughout the body have been largely ignored (until recently) by western scientists. As a result, our use of them for emotional and spiritual healing has been sparse at best. With EFT, however, these subtle energies are considered to be the front running cause of emotional upsets. There is a great deal of detailed information on the website including a free download of the entire EFT manual, a newcomers video on CD, tutorials, info for training programs for healthcare practitioners, case histories, email support, transcripts of recorded sessions and interviews, related articles and websites, a searchable database to find am EFT trained practitioner, Q & A and more. Easy to learn and use.

Note: Deepak Chopra MD is now charging approximately $3000-3500 for an EFT seminar. While of course it would be ideal to have this process guided by a master healer and author, it's not necessary, and all the tools are available free on the website.

The Association for Comprehensive Energy Psychology http://www.energypsych.org This an international nonprofit organization promoting professional energy psychology and collaboration among practitioners, researchers and licensing bodies. Energy psychology is a family of mind/body techniques that are clinically observed to consistently help with a wide range of psychological conditions. These interventions address the human vibrational matrix, which consists of three major interacting systems:

  • Energy pathways (meridians and related acupoints)
  • Energy centers (chakras)
  • Human biofield (systems of energy that envelop the body)

These techniques are also helpful in promoting high-level mind-body health and peak performance in the physical, mental and creative arenas of life. There is a searchable database of practitioners on the website.

 

Biological Dentistry

Also called Holistic Dentistry, this involves an awareness of dental health and care as it relates to the entire person. It is founded on the concept that the condition of the mouth and teeth can affect the general health of the body and vice versa, with the understanding that the human body is a complex network of interrelated systems. Many biological dentists work in conjunction with other alternative healthcare providers. The most common procedures include neural therapy, oral acupuncture, cold laser therapy, mouth balancing and removal of dental fillings and other restorations created with toxic materials and substitution with safe non-toxic (bio-compatible) materials. Biological dentists also work to eliminate chronic infections in the mouth which can include cavitations in the jaw-bone and infections from prior root canal procedures.

Two schools of thought run through biological dentistry. One asserts that the materials used in mainstream dentistry are toxic and can promote serious disorders elsewhere in the body. By weakening the immune system or attacking the nervous system, these materials are said to cause ailments ranging from Alzheimer's disease, chronic fatigue syndrome, and arthritis to kidney problems, heart disease and even cancer. Removing the offending materials is therefore proposed to help with detoxification and healing.

The second school of thought holds that the teeth and surrounding tissues are linked to other organs in the body through a network of energy channels, such as the meridians of acupuncture, thereby explaining how the health of the mouth and teeth directly affects other organs and body systems. Claims for oral acupuncture include relief of toothaches, tooth sensitivities, jaw pain, gingivitis, neuralgia, sinusitis, and pain in distant parts of the body. In addition, the oral acupuncture points behind the last upper and lower molars have been used to treat shoulder and elbow pain, neck pain, restricted neck movement, low back pain, and TMJ.

A good biological dentist will choose the least invasive and most effective treatment available, working to avoid any unnecessary structural changes in the mouth. If you are interested in exploring biological dentistry, the following websites are a good place to begin:

http://www.holisticmed.com/www/dental.html An interesting site with good information and lots of scientific articles

http://www.holisticdental.org/ Website for the Holistic Dental Association, includes a small searchable database of dentists. Email is hda@frontier.net

http://www.heall.com/resource/dentists.html A list of alternative, holistic dentists and info on biological dentistry

http://mercuryfreedentists.com/ Another list with a searchable database

International Academy of Oral Medicine & Toxicology (IAOMT) http://www.iaomt.org The IAOMT is a membership organization for dental, medical and research professionals who seek to promote mercury-free dentistry, and raise the standards of scientific biocompatibility in dental practice. Includes lots of information on the dangers of mercury and a searchable database for finding a dentist.

Paracelsus Clinic (Switzerland) http://www.paracelsus.ch Dr. Thomas Rau, Medical Director, is both a medical doctor and a biological dentist, and there are additional dentists on staff. If you’re looking for an exquisite European location in the Alps for major dental work (and possibly not costing much more than here in the US), you may want to check out this clinic. Holistic dental work plays a major role in medical treatment protocols at Paracelsus.

Retreats for Cancer Patients

Cancer is an enormous challenge and sometimes the best choice is to just get away from "reality" and take some precious time for going inside ourselves and getting our bearings. It can help to have the support of other cancer patients also focused on whole person healing. It's absolutely amazing how just the right group of like-minded individiuals can seem to coincidentally come together when healing is chosen--and each receives exactly what he or she needs to move forward. It might even to be said to be divinely orchestrated.

Commonweal Cancer Help Program (San Francisco, CA)
http://www.commonweal.org
Contact Waz Thomas, Program Coordinator, at 415-868-0970.

The Commonweal Cancer Help Program (CCHP) is a week-long retreat for people with cancer. It addresses unmet needs such as finding balanced information on choices in healing, mainstream and complementary therapies; exploring emotional and spiritual dimensions of cancer; discovering that illness can sometimes lead to a richer and fuller life; and experiencing genuine community with others facing a cancer diagnosis.

CCHP is for people at any stage in the cancer journey and their significant others. It provides an exceptionally high quality opportunity to explore the physical, mental, emotional and spiritual dimensions of healing with cancer. The retreats are limited to eight or nine participants. CCHP works best for people who are comfortable in small group settings and are curious about the healing process. It's an educational, not treatment program. Participants must be under the care of a physician, able to care for themselves, able to participate in the daily program, and medically stable enough to spend a week in a rural retreat setting. This is a well known and well-respected program.

Smith Farm for Healing & the Arts (Washington, DC)
http://www.smithfarm.com
Phone: 202-483-8600

A Washington, DC-based nonprofit health, education and creative arts organization that serves individuals, families and communities affected by cancer. Smith Farm Center retreats and programs foster internal healing, stimulate creative and spiritual resources, enhance living and complement mainstream medical care. Programs are led by a committed community of psychotherapists, artists, writers, physicians, educators, yoga and massage instructors, nutritionists, chefs and other professionals. Cancer Help Program Residential Retreats are held in a lodge setting in the hills just beyond Washington DC, These weeklong residential retreats—designed in partnership with the Commonweal Cancer Help program (see previous listing) developed by Dr. Michael Lerner and Dr. Rachel Naomi Remen — offer a spectacular year-round environment for integration, reflection and healing transformation. There are also day retreats, programs and workshops at their Center in Washington, DC. Some scholarships may be available.

Sunstone Cancer Support Foundation (Tucson, AZ)
http://www.sunstonehealing.net

Retreats for cancer patients including adults, teens and children, their caregivers, as well as programs for healthcare professionals. Located on a 14 acre ranch, costs are kept low and partial scholarships may be available. Complementary therapies available such as acupuncture, energy work, massage etc. Focus is on mind-body medicine.

Harmony Hill Cancer Retreats (Union, WA)
http://www.harmonyhill.org/retreats/cancerinfo.html

Harmony Hill’s free cancer retreats are 3 day weekend residential programs (one day mini retreats also offered) that help those facing cancer and their loved ones cope with the physical, emotional, and spiritual challenges of cancer. Through stress reduction skills, guided imagery, daily support groups for learning and sharing, yoga, and massage, participants facilitate their own healing and restore quality of life. Includes whole-foods meals, and opportunities for relaxation and renewal in a tranquil retreat environment of gardens, nature trails, beach access, and spectacular mountain and water views. All programs are free and include meals and lodging. For more info call 360-898-2363.

Life Beyond Cancer (Tucson AZ)
lifebeyondcancer@usoncology.com
http://www.lifeinbalance.com

A three or four day retreat for women cancer survivors at Miraval, Life in Balance resort in Tucson, AZ. Focusing on physical, emotional and spiritual issues related to wellness after cancer treatment, there are a variety of workshops, lectures and group activities. The goal is to enable participants to return to their local communities to begin support services and advocacy programs, while having a meaningful and healing personal experience.

Stowe Weekend of Hope (Stowe, VT)
http://www.stowehope.org

Held every spring, the Stowe Weekend of Hope was founded in 2001 and continues to be an outreach three day weekend retreat experience for hundreds of cancer survivors and their families in the restorative environment of Stowe, Vermont. Since its inception, this event has grown locally and nationally to continue to inspire the search for new and innovative research and education in both traditional and non-traditional cancer treatments and therapies. This forum promotes real educational opportunities for cancer patients and presents the most current medical research in all areas of cancer treatments.

HealthQuarters Ministries (Colorado Springs, CO)
http://www.healthquarters.org/hqm_Lodge.html

An 8 day intensive detoxification and immune system building program using raw foods, organic juices, coffee enemas. supplements etc. There is a strong Christian focus with prayer and emphasis on spiritual renewal.

Hawaii Gerson Therapy Retreat (Keaau, HI)
http://www.gersonhawaii.us

Some background: The Gerson Therapy is a long term nutritional program used successfully for over 50 years in the treatment and prevention of cancer. The nutritional program consists of fresh organic vegetable juices, 3 meals per day made of raw and cooked food and supplemental vitamins, minerals and enzymes. The therapy is based on detoxification and nourishment of the body and restoration of the immune system.

This is a 2 week program, designed to maximize your chances of successfully continuing the therapy at home and it includes plenty of instruction. If you need assistance in your daily activities you are required to bring a companion, who may be a spouse, a child or a friend-- and both of you will be educated about all the aspects of the program. The location is a beautiful naturopathic retreat center on the big island of Hawaii.

Retreats for Children, Teens & Young Adults

Though perhaps not exclusive for these age groups, these camps and retreats are worth exploring for young cancer patients.

Camp Mak-A-Dream (Missoula, MO)
http://www.campdream.org

It is a free camp for 6 to 25 year old cancer patients located near Missoula, Montana. Camps held throughout the year. There is a cost for adults.

First Descents (Vail, CO)
970-476-9400
http://www.firstdescents.org

It holds free, week long camps in Vail, Colorado and Kalispell, Montana for young adults. Activities such as kayaking, horseback riding, fishing and rock climbing.